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Two questions: Does anyone have information on funding for the PSP and how much each org gave? And would you include any contributions from the MRC and NIHR and Chief Scientist Office for Scotland in UK ME/CFS research spending? The project is not included in either the UKRI or NIHR databases...

There are a few threads on here where he is discussed. For me, he's firmly in the quack category. Perhaps he's a bit like the US version of Dr Myhill. Hypotheses presented as fact, and lots of expensive supplements (and several books for good measure)!

I should be invoicing the Guardian at this point.

It's strange that Lancet TV never took off...

The author is a freelance writer based in the US. He may have been asked to pitch by Remission Biome.

Thanks. Forgot about that thread. It overlaps with this one but much of that thread's discussion is about getting info together for advocacy.

I found this article (https://www.bmj.com/content/346/bmj.f2630.full) on the formation of the CMRC and it apparently mentions Wellcome Trust (who provided £10,000) but I can't access the paper. Has anyone got access?

Hmm not sure. It seems the link to the WT there is that one of the authors of the paper being reported on works (or worked) at the Wellcome Trust's Sanger Institute. But you may be right.

Ok thanks. Not sure I knew that. Any more info on this—e.g, size of their award contribution—would be welcome. EDIT: This FOI response gives the figure: https://www.gov.scot/publications/foi-18-00619/

Also, I have a question for anyone in the know: the above report details 1 grant from the Wellcome Trust and 1 grant from the Chief Scientist Office in Scotland. Does anyone know what these grants were? I know the Wellcome Trust provided funds for the CMRC research conference in 2015(?), but I'm...

A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.

No, the press release is written when an article is published (usually if it's deemed as high impact and might be reported on in the media) by someone in the department/at the university. Most universities do this. Nothing stange about it.

We have the "forthcoming individual patient data meta-analysis of exercise therapy trials for CFS/ ME" to look forward to. I can hardly wait.

That's a decent statement and avoids technical details that don't fit well in newspaper letters. Hope it is published.

Looks like the first author works for this lot (who sell vitamin injections etc): https://gb.revivme.com/

I hope you will submit these comments to the journal @ME/CFS Skeptic. You know this stuff well.

Again, I don't want to take this too far off topic, but my post above is about responses to the White commentary and media.

Yes, I knew Andrew had left but had forgotten. I don't think FME was ever intended to be one organization; it was meant to bring all the charities together under one umbrella. Today would be a prime example of how FME could work; you would have FME issuing a statement in response to yesterday's...

Yes, don't want to go too far off topic, but one more comment: We tried to get them to use Slack to coordinate advocacy and the type of response you'd want to see today. We failed miserably.

We were meant to have ForwardME now as a unified voice (when I was in MERC PAG and was involved with their meetings, we spoke about their being more proactive and quicker off the mark). Now they've gone silent again and their subpar website hasn't been updated for the best part of a year.