I don't know enough about this area, but running a charity (The Optimum Health Clinic Foundation) alongside a LTD company (The Optimum Health Clinic) seems suspicious. From the accounts, it seems that the charity's income is mostly from the LTD, and that this money is used on overheads such as...
This year's IACFS/ME conference is in July. More here: https://www.iacfsme.org/2022-conference-main-page/
I would start a new thread, but it is not clear yet if this is going to be streamed and that we can therefore participate in the conference somewhat. I suspect not.
Yesterday, I sent the following email to GinP and the editor:
Dear Gemma / Guidelines In Practice
My name is Dr Dom Salisbury, and I’m a patient with ME/CFS. I’m also a patient advocate, and a member of the ME Research Collaborative (MERC) Patient Advisory Group.
The Chair of MERC is Dr David...
This paper (https://mdpi-res.com/d_attachment/healthcare/healthcare-09-01331/article_deploy/healthcare-09-01331-v3.pdf?version=1634002990) cites another (reference 6: https://journals.sagepub.com/doi/10.1177/1742395316644770) that gives the 25% figure, but I can't access it.
Edit: The 25%...
Please note that if this conference goes ahead, there may well be a significant number of presentations on long covid (specifically, I hope, on the LC cohort with ME/CFS or an ME/CFS-like illness). This is a reflections of the times, and a strategic decision to engage these researchers with the...
There are plans for an ME Research Collaborative (previously CMRC) conference later this year (September, if possible). We are currently putting together a draft agenda in the hope of approaching potential funders. The dates are not yet fully fixed. The conference will be hybrid (in-person and...
They've now edited to: "This is different to "long Covid", where symptoms persist after the infection has gone." and linked to the NHS page for long-Covid. :banghead:
I thought that, but Perrin seems like small fry compared with the BPS lot. I have known about him for years and still can't decide if he has good intentions or not.
There's a lot of dodgy stuff going on. In the current issue of the journal there are 4 papers, and 3 are by the same author, Adrian Heald, who is lead author on this paper. I suspect Heald has a link to this journal and has suggested publication here.
And the Conflicts of Interest is a joke. No...
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David stated on a recent CMRC call that this article will reach thousands of healthcare professionals, probably via email subscription to the publication.
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