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They really love throwing money at this crap, don't they? "I'm going to interview some kids, and do some crappy and patronising qualitative analysis based on questionnaires." MRC: Take our money!

"I learned that my Covid-19 infection had probably induced a physiological stress response that put my brain in a state of high activation and had an immediate effect on my hormone, heart, gastrointestinal and immune systems." Paul discovers the concept of being ill.

He'd probably agree with them now.

Yes, I hadn't thought of that. Maybe the April meeting was cancelled. But surely they've not gone nearly three months without a meeting. They were part-way through going through the recommendations.

Actually, I emailed last month and had no reply. Perhaps someone else wants to try a further email.

It looks like the most recent Committee meeting minutes haven't been published on the guideline website. The last minutes note that the next meeting was scheduled for 19 April. I assume this went ahead; there may have even been another meeting since then. Not good enough.

Did someone have to log-in to get access to this webinar? Looking at the complaints procedure, any complaint might have to come from healthcare professionals getting the training...

But Health Education England is part of the NHS, and also has its own complaints system.

I really feel this needs reporting.

As I've just tweeted, this is medical abuse/harm in real time. I'm crashing at the moment and this has made me want to put my fist through a door in despair/frustration. Chalder is a danger. A dangerous charlatan. She's done no less harm than Wessely, White, or Sharpe.

He knew we'd all be watching. ;)

Is this from their website?

Some questions. Perhaps @Medfeb knows the answers... (i) Do organisations have to pre-register in any way, or can anyone submit a response? (ii) Is this a draft of a final product, or is this document used to, for example, create a set of guidelines/recommendations? It's really not very user...

I'm in favour of a S4ME response, and can probably contribute. I need to look through the review first and decide, and also see if the CMRC PAG wants to submit a response (though I suspect we might not due to other commitments).

Discussion from author here: Lots of work/findings on endothelial cells / function recently, including in POTS. I have no idea what they are / do. :-$

https://www.nature.com/articles/s41598-021-89834-9 ABSTRACT Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease characterized by unexplained debilitating fatigue. Although the etiology is unknown, evidence supports immunological abnormalities, such as persistent...

Is this not it, further down that thread: PACE Trial application to MRC for funding in 2002

Yes, I guess it's a sort of a front for her advocacy work. She has used the term 'Alliance' in various forms to put on events etc in the past.

I wonder if non-US organisations can submit evidence?

I wonder if this is the closest thing the US has to the NICE Guideline. I remember reading about this a couple of years ago. There was concern that the Pacific Northwest Evidence-Based Practice Center was being awarded the contract with no competitive bidding process. MEAction teamed up with...