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  1. MrMagoo

    Disabled speaker barred from university debate on assisted suicide

    Oh no, the person has to go up in an evac chair.
  2. MrMagoo

    Disabled speaker barred from university debate on assisted suicide

    Erm - no. I’ve seen a stressed facilities manager offer to do that and they got a serious dressing down from the power chair user.
  3. MrMagoo

    Disabled speaker barred from university debate on assisted suicide

    Oh in that case they’ve learned a useful lesson. Not one that the good Dr needed to learn again, though.
  4. MrMagoo

    Disabled speaker barred from university debate on assisted suicide

    Yes the exploration of alternatives seems lacking. I’d guess they were just in some student Union room and they have the tiny lifts in the old building. Just shows that the organisers who invited him are in need of some serious training, they should be ashamed.
  5. MrMagoo

    Disabled speaker barred from university debate on assisted suicide

    I can imagine a lot of Edinburgh Uni is inaccessible to be honest.
  6. MrMagoo

    United Kingdom: ME Association governance issues

    Nail on head, that report. I know there was a bad experience with a CEO in the past, but they just need proper oversight by trustees, CEO’s get ousted all the time.
  7. MrMagoo

    Let's talk about taking responsibility and living with a chronic disabling illness

    So I do think that the issue is semantics. Some people are using a word in one way that isn’t the same as another person would use it. To take responsibility seems to mean you should change your illness/not be ill. Well we know that isn’t possible. Let’s think about the opposite. What does it...
  8. MrMagoo

    ME Association's 2024 Annual Report released.

    The behaviour from MEA over and at that meeting was despicable. I guess this is partly why.
  9. MrMagoo

    Guardian piece on"Lyme"

    I wish someone would ask PG if he would be open to the idea that his views are nothing special and would he consider not boring everyone with them.
  10. MrMagoo

    Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

    He has been appointed as a parliamentary champion Discussion here Post in thread 'United Kingdom: Action for ME (AfME) news' https://www.s4me.info/threads/united-kingdom-action-for-me-afme-news.18538/post-645466
  11. MrMagoo

    United Kingdom: Action for ME (AfME) news

    Yes I’m glad there have been good “food for thought” points to make people think twice. He is, of course, most remembered for cutting Dr’s pay and unprecedented strikes as a result of his policy. On the face of it he would seem like the enemy of healthcare. As I say, I believe he will be a good...
  12. MrMagoo

    United Kingdom: Action for ME (AfME) news

    I wonder whether there’s a Sajid Javid link? Whilst the Conservatives are not thought of as being our natural champions, Jeremy Hunt does not just take on extra responsibility without good reason.
  13. MrMagoo

    United Kingdom: Action for ME (AfME) news

    At the risk of being political, whilst he was problematic as Health Secretary as a politician he is very solid, and I actually think this is both interesting and quite good. I’m not really in a position to explain why, so let’s see what happens.
  14. MrMagoo

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Sadly I think they know all of this and are ok with it. Also if you say this kind of thing you’ll be accused of hysteria
  15. MrMagoo

    How would an Average pwME/carer (no biology knowledge or access to S4ME) be able to tell when a mechanism has been discovered vs bio “memes” and hype?

    I found here after becoming fed up with the MEA on socials announcing a new study which shows that something something definitely breakthrough etc. never to be hear of again. I would be no use in a cult or MLM, if you keep telling me the Wow Best Ever thing is happening and it keeps “not...
  16. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I wish he’d try anything other than being whatever this is.
  17. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I’m not going to write what I think as I will just make work for the mods. Suffice to say, he is a sea lion. I’m glad Sarah has called out the grief hijacking and clout chasing. No need to use my feed for self-promotion Paul Garner. I am very well aware of your position and we all know how...
  18. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It reminds me of when some Britain First/BNP far right party erected a sign in memorial to a girl who was run over and killed by a guy who wasn’t British. They did it for clout/attention and the girl’s family were disgusted her name and memory was being used to promote something she and they...
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