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Thanks Forbin, I don't think we have a thread for that paper. I'll make one. When I have full-on PEM, I'll typically get a cold sore. For 18 months, I had serial cold sores, as in, I always had one, until I was given valacyclovir tablets. Presumably then, the re-activated viruses are...

I've just done it, and I was a little bit disappointed. It's pretty good. My major concern was that, by mentioning findings from preliminary small studies, it might undermine its credibility. For example, it says that hEDS is a relevant co-diagnosis and that 20% of people with hEDS have...

https://www.rnz.co.nz/news/national...mics-help-plan-world-s-recovery-from-pandemic A International Science Council project - ISC Covid-19 Scenarios Project has recently been launched. The panel of international science leaders include representatives from the World Health Organisation, the...

https://www.rnz.co.nz/news/national/436621/new-zealand-academics-help-plan-world-s-recovery-from-pandemic It could be worth highlighting to both men (and others on the panel) the need to address the burden of Long Covid the countries that have had high rates of Covid-19 will feel, so that they...

Here's a couple of threads tagged with red blood cell deformability and me/cfs: Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018) The Deformability of Red Blood Cells in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) - Thesis...

Many effects are non-permanent, it's just a matter of the time-scale. In a hundred years time, my disability will no longer be a problem in terms of 'the working population as a whole'.

We have a number of threads on the forum about cortisol studies in ME/CFS. Try searching for threads tagged with 'cortisol'. (edit - if you go to the top of this thread and look on the left under the title, you will see the 'cortisol' tag. If you click on that, you will see all the threads...

Wow, that's quite a paragraph. If you read it quickly, the overall impression is of quite a lot of people experiencing significant improvement. But, it tells us most people either experience no change or only a small temporary improvement in pain, and 5 trials found that people's pain didn't...

Yup

If a person with ME/CFS or a researcher uses the illness name 'CFS', many people active in the ME/CFS community will assess the chances of that person either not being aware of ME/CFS politics, or holding BPS views as higher than if they used 'ME/CFS'. That's not necessarily right, but it does...

It can quite easily be dire even without Gerada and Greenhalgh. In my region of New Zealand, we got the regional health authority online guidance for ME/CFS for doctors improved to something that was pretty good. I told my GP about it last year, and she said that she had seen the update...

This video features Jessica, a physiotherapist from Calgary, Alberta, Canada who has recently become aware of ME/CFS and the issues around exercise. LongCovidPhysio - Jessica "Breathing Pattern Disorders", video 2021 I think she is someone that Canadian advocates might benefit from knowing about.

A post has been moved to its own thread here: LongCovidPhysio - Jessica "Breathing Pattern Disorders", video 2021

I thought this was a very interesting video, as much, if not more because of the demonstration of how to be a good health professional than anything about breathing e.g. listen to what your patients are telling you; keep learning; keep records; don't think that therapies you've tried before...

Yes, I do wonder how much basis this idea of 'faulty breathing' without any physiological basis has - that is, 'faulty breathing' that can be fixed just with behavioural advice. Butyeko is mentioned as one approach to correcting faulty breathing, but I had the impression there wasn't much...

Just by the way, I'm in New Zealand.

Case report from a team in Slovakia using CPET for investigation of an adolescent with chronic fatigue - thread here: Case report: Young and exhausted, Oleksak et al, 2021 Filip Olekšák, Peter Ďurdík, Ľubica Jakušová, Tomáš Turčan, Peter Bánovčin Department of Children and...

Positives are that two day CPET was used to understand what was going on for this young person and there was knowledge of PEM as a defining characteristic of CFS. It was acknowledged that the CPET results did not fit the pattern of CFS. Rapid, disordered breathing was identified as the cause...

Has there been any reaction from Long Covid groups?

This thread might be interesting Xalexon; maybe it's something that hasn't been considered. Prevalence of biliary acid malabsorption in patients with chronic diarrhoea of functional characteristics: a prospective study, Flores et al, 2021