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This makes me think of the fact that Post Treatment Lyme disease and ME/CFS are clinically similar [https://pubmed.ncbi.nlm.nih.gov/21383843/]. If this paper has identified a mechanism, then could that explain Post Treatment Lyme disease/post infection ME? Has this technique yielded results in...

Yip I agree @rvallee "the referrals to regulatory bodies" - that's what they exist for i.e. to refer professionals you are concerned about.

@Rain I booked an appointment at a large vaccination centre (leisure centre) so yes I thought it was a lottery win "Pfizer" - turned out they did both Pfizer & AZ --- I got AZ! So booking a vaccination centre, which normally does Pfizer, isn't a guarantee. There's a high profile case here (N...

All of this reminds me of previous post by @Jonathan Edwards "evangelical hypocrisy" https://www.s4me.info/threads/paul-garner-on-long-covid-and-me-cfs-bmj-articles.15629/page-33#post-322586 Makes you wonder how university academics can get away with publicising these views - surely it damages...

This reminds me of what @Jonathan Edwards has been saying "“In the past in ME/CFS research, which has been really underfunded for a long period of time, people do what they can. People have taken white blood cells,” he says. “The problem with that is white blood cells are not a highly energetic...

Thanks @Trish

Hi here's an initial attempt re question to the Secretary of State: "The PACE trial set out to discover whether cognitive behaviour therapy [CBT] and graded exercise therapy [GET] are safe and effective forms of treatment for myalgic encephalomyelitis/chronic fatigue syndrome." The original...

Check out @Jonathan Edwards post re the fact that the initial trials on rituximab suggested that rituximab would work in ME but the phase 3 trial proved it didn't, suggesting a significant placebo effect - so how could you correct for that? It appears that you'd need the incidence for those who...

AstraZenica is 10% effective, against the South African variant, i.e. where use use symptoms (not hospitalisations) as your measure of efficacy. So you're getting infected - whether you get Long covid is another question. Same goes for other vaccines - you may well be getting infected but be...

There was a guy (from UK?) speaking on Radio 4 last week [maybe Inside Health] and he was suggesting that some people with Long covid reported improvement at 1st vaccination - but it wasn't consistent. @Jonathan Edwards highlighted the high placebo effect, in the early Rituximab trial in ME; so...

No idea. I think one of the problems would be getting consistent diagnosis re Long covid - possibly you could use actimetry/electronic activity monitoring (for the people who are similar to ME) - even there you don't have baseline (before). I heard that one of the research areas in post corona...

It's interesting how many medical professionals have been reluctant to be vaccinated - even now when the data (showing lower incidence in medical professionals who've been vaccinated/their families) is available!

Another thing is that we now have a South African variant which the AstraZeneca is 10% effective against i.e. 90% still get symptomatic disease. So maybe the South African variant can still be transmitted by people who've been vaccinated with AstraZeneca - transmission in the community is...

Got this reply from my MP: "Thanks for getting in touch to raise this. We can certainly ask a written question about the issue to the Secretary of State for Health, but perhaps you think it may be best raised via the Public Accounts Committee. They can be contacted via this email...

Brilliant - thanks for the laugh & the insight @Snow Leopard I've just had the AstraZenica vaccine and to adjust the phrase --- a (AstraZenica) vaccine in the arm is better than none (other option). I'm getting a bit --- off that they seem incapable of following the rules --- first the...

Thanks for your comments @Snow Leopard they remind me of @Jonathan Edwards comment "When I acted as MRC advisor this recent time around the GWAS project was the one thing that looked worthwhile, apart from maybe some actimetry studies."...

I was a (failed) science technician back in the day and one of my jobs was to test sick swans for lead poisoning. The levels were pretty horrendous; I fleeting thought they must have had enough to act as ballast. Heard recently that the "voluntary" code (non-toxic shot over wetlands) has failed...

Looks like a comedy sketch! If they had objective measures at the start and subjective measurements at the end (and we know that subjective outcome monitoring overestimates activity) then that's a pretty neat (apologies) way to cook the books. If they'd used subjective indicators...

Thanks @dave30th could you explain what "HRA" is? If I can get this moving (unlikely) then it may be useful to have details of the project/study protocol (links etc.).

Split thread @Colin If you check out some of the OMF Community Symposium's you'll see the results of a study of metals in people with ME. From memory: one person had high mercury and they ate a lot of (pacific?) salmon; pacific salmon are long lived and bioaccumulate mercury. A couple of people...