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That's Bay Area Lyme. How circuitous of them. Lol. Thanks @Mij , I'm going to call just to say WTF. Nicely. In a patronizing old guy sorta way.

No phone number. Shame on them. It may be a generation thing, but if I can't talk to somebody, I'm not filling out any questionnaire.

Understood. Thank you. For the first time in about a decade, I just had my EBV and HHV6 levels tested. I feel like crap and likely look like death as well, but am unsure what my high titers signify other that past exposure - that's why I asked. :)

I'm sorry. How did you decide you'd HHV6 and EBV reactivation? I'm not disputing this; I'm asking to the metric. Why I'm asking is because I distrust current standards across many infections. I respect your interpretation.

May I ask, expressed how?

With immune tolerance, in theory, virus can persist without producing antibodies, so it's only through PCR or direct culture that we can "see" them, and if they're recused in reservoirs hard to access - like brain tissue -persistence can be difficult to demonstrate.

With a title like that, who needs an abstract?

Btw, I am aware he is making this our fight, and am relieved and empowered that we have members far smarter than I that are willing to take him square on and highlight the holes in his specious "theory". I just think we should be responding to him with "Hey, kid, you're in the wrong class" as well.

Understood. And well done. I'm just suggesting this shouldn't have to be our fight. We have many symptoms. One of my worst is balance. This can be objectively tested for. Fine. But there are others that cannot. Walitt is making a case based on one claim that he really is making, while...

I'm not sure that is our main argument. I think that's what Walitt appears so eager to disprove. I think our main argument is we are too sick with too many persistent symptoms to have any meaningful QoL, and to engage in any substantive effort for too long without having to stop because of...

I fear that resolution to the contested disease debacle must be political. That means, probably, something bipartisan. There really isn't much of bipartisan going around in the US these days. If there were, it likely wouldn't flow in our direction. We may have to build a better mouse trap, but...

@Dakota15 , I'm sorry, I don't know which group you're affiliated with. Do you work with Jamie Selzter? Sorry, my memory is not good. But I'm thinking I want to try to contribute something to the national cause, more politically, while I may still be able. When we were healthy, way back when...

I think this is an appealing idea. I don't think it will apply to cognitive/emotion/focus-based PEM, though. Still cool to try.

I still want to rail. Especially when inserting ideology into the mix. Ideologies come and go, though. This is sustained bullshit that has endured scores of years, and spanned countries and continents. I'm not sure what the constant is beyond sick people being mischaracterized and ostracized...

This is intriguing. One point, however: channelopathies can also manifest with delays.

I worry that this is a top down phenomenon, one with many points of influence. I think it predates Wallit,, that he is a downstream ripple, a means to an end, much as the BPS school is. Someone years ago suggested the way out of this morass would be through political leverage. Maybe so. In...

Oh dear. If there are persistent foreign antigens at play, then no, this argument cannot be right. This seems to me more dangerous than wishful thinking. ETA: They'd have to demonstrate an agnostic antigen, one common to groups of people, self-generated, but not a remnant or debris from the...

To me this feels like a contrived forced fit. It reads like that. The logic feels like that. The entire Wallit thing doesn't fit. They jammed this thing in. So why force it now when the spot light is on? Well, it could be Stupid and greed and culture. They seem to be present everywhere in...

Fair. But looking at how they initially approached the study (2015/2016?), in conjunction with the cluster-fuck end product, may suggest they had a pretty good idea of where they wanted to go. Oh, I don't think it's going to be limited to just one patient community.

Mass hysteria? Made sense to me given the roots of the NIH coupled with how it's handled other contested conditions. Maybe they'll call in the interoceptive team to ramrod an investigation.