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  1. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He hasn't tweeted that. Let's stick to what he actually says.
  2. InitialConditions

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    Thanks. I thought it a good opportunity to cite the factsheet, as well as link to the Dialogues films on PEM.
  3. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I found this interesting, from his valedictory lecture in 2022. I have clipped it from the full recording. Paul Garner's love of controvery and media appearances https://youtube.com/clip/Ugkxu6OQZGGA4E5wZxc8sMUhCnFz95T9-y3f?si=k6LZsIC_SUfheRwT
  4. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Stress Illness Recovery Practitioners’ Association They seem to be disciples of John Sarno, one of the first mind–body guys, who invented a new illness called tension myositis syndrome (TMS).
  5. InitialConditions

    2025: UK MEA Article and Video: ME/CFS: What you need to know about the disease

    New video on YouTube, which looks like a video version of the above PDF:
  6. InitialConditions

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    No, that was apparently somehwere in Liverpool. This BMJ piece mentions the NHS NICPM service in Leeds.
  7. InitialConditions

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    I know of one patient who came out of NICPM much improved, then started volunteering, studying again, even working a bit, until they had a major relapse/crash.
  8. InitialConditions

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    Because the pandemic made their waiting list even longer — 2–3 years from referral — which they felt was inappropriate.
  9. InitialConditions

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    I don't think so. It closed it's doors to out-of-area referrals a few years ago.
  10. InitialConditions

    Genome-wide analyses identify 30 loci associated with obsessive–compulsive disorder, 2025, Strom et al.

    Conversation article here: https://theconversation.com/researchers-uncovered-hundreds-of-genes-linked-to-ocd-providing-clues-about-how-it-changes-the-brain-new-research-255572
  11. InitialConditions

    United Kingdom: News from #There for ME

    I think from your qoute tweet you might be implying that we could look at disability/benefits figures to help with understanding prevalence figures. But it's just not possible — there are too many complicating factors: (taking PIP as an example) lots of people choose not to claim; those over...
  12. InitialConditions

    Pill / tablet cutter

    I have gone for one of the highly rated but relatively cheap ones off Amazon. I'll see how it is. If it starts to blunt or otherwise play up I'll pay more next time.
  13. InitialConditions

    Pill / tablet cutter

    thanks. don't think i have any like this that need cutting.
  14. InitialConditions

    Pill / tablet cutter

    Has anyone got one that they would recommend? I think I could do with one. Might need to split small pills into quarters so I need something that can cope with that. Thanks.
  15. InitialConditions

    Normative data for the 10-min Lean Test in individuals without Orthostatic Intolerance

    But these are healthy controls, so you'd expect small increases in HR and very few to none meeting PoTS criteria. Unless I am misinterpreting your post...?
  16. InitialConditions

    Action for ME (UK) fundraising (AfME)

    This is Action For ME, one of the two main UK charities, not ME Action. I definitely feel more comfortable donating to AfME than the ME Association these days.
  17. InitialConditions

    Action for ME (UK) fundraising (AfME)

    Not a bad idea really. I have purchased some raffle tickets.
  18. InitialConditions

    Action for ME (UK) fundraising (AfME)

    I think you used the wrong link Andy. Lottery here: https://www.actionforme.org.uk/support-us/other-ways-to-support-us/play-the-unity-lottery/
  19. InitialConditions

    Oura Ring 4

    This is also the case for me. I'm not exactly sure what it's sensing — increased heart rate or perhaps something else.
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