Search results

I have issues with my sentence construction and grammar. So does the person who wrote this webpage. The difference is they didn’t get a second and third opinion before pressing send. It’s very poor English.

I hope she’s able to think on what label I have for her opinions masquerading as fact. It starts with g and has 8 letters. I’ve a special detector for this sort of thing.

Nothing says public sector like centralising a decentralised service, which used to be centralised!

Man who works in neuroscience fails to cure own disability; is praised for curing own disability. We can all write daft headlines.

Well I think the pandemic led to a lot of people becoming disabled and unable to work. You don’t like the fact that it’s disabled people in its thousands, to the extent they can’t work, therefore you’re going to make them poor so they have to work. I mean the alternative would be to help them...

Yes, he should know he is still thought of and we appreciate him.

Exercise is untested, they should test it. Properly.

Maybe it’s based on “Business Secrets of the Pharaohs”

We’ve all got ME, sometimes the brain doesn’t brain. If anyone can understand that, it’s us. A simple admission of making an error is fine. It’s the behaviours that caused the biggest problem.

P D White diagnosed me with Fibromyalgia and recommended GET and CBT back in these days. “Luckily” the physio dept wasn’t actually set up for GET (I had two sessions; 1. Do these exercises. 2. Did you do them? Ok, just keep doing them and increase the reps) I just had the psychological warfare...

It makes no sense. But it happens all the time.

Just to let you know, when UC ask for your documents they look at them and often delete them. I’ve had to upload the same letter 5 times so far as they keep getting my housing payment wrong and each time they look into it, the letter has been deleted “for GDPR”. And every time they ask, they...

I think they said they have Board Members with ME = lived experience. But the MEA has the same and look how Neil Riley turned out!

I took my medical notebook with me. I’ve had it since I worked, it lists notes of conversations with the GP etc but also all the adjustments etc I had at work in the past, it was quite useful.

Their own pages clearly state that they are an organisation of clinicians working in ME/CFS so are they representing us even though we wouldn’t be allowed to join as we’re not clinicians or working in ME/CFS?????

Oh really? Honestly sometimes you need to step away from the internet. Not everyone will agree with you all of the time.

For me the WCA process was really good (much better than PIP) they did make me travel 1hr to the place to be assessed, but that was ok as I was a sweaty shaky wreck. After the assessment I asked for a place to lie down, they had medical exam type beds in the rooms so I had a good rest before the...

Neil Riley has resigned https://meassociation.org.uk/2025/03/a-chairman-resignation-statement-to-the-me-community/?fbclid=IwY2xjawI0FrpleHRuA2FlbQIxMQABHWPGQ2gNhWbeQyJtRAwjsRv7Alw3hCcjqTjlIozwBdwZNfMmcqk3IIgD4w_aem_Nhl9bYkeKu1WMOQiSCncsg to discuss...

Neil Riley has resigned!!!!!!! discussion on this thread https://www.s4me.info/threads/united-kingdom-me-association-governance-issues.42093/page-66#post-591834

My appeal found I can cook using aids. Not sure what aids they have in mind as I described why a variety of common cooking aids like perch stool, good grips etc wouldn’t help me, and nothing can aid me chopp8ng or cooking from a lying down position. I believe this is an error in law, apparently...