Search results

It is a mixed bag. But I wouldn't say it is worse, far as I can tell. Should say that I am now quite removed from the day-to-day coalface battles here, as 1) I am a very long term patient and disability pensioner, and 2) am also nearing the age where I qualify for the old age pension. In other...

Short version: Relying on superficial symptom count based diagnoses is not scientific nor helpful to patients. As some, including at the highest level of the profession, have been pointing out for a long time.

Instructions for folding shirts: 1. Don't fold shirt. 2. If t-shirt, then throw into drawer. 3. If collared, then throw over bedhead. End. ---------------------- There are some actions/tasks which require you to do (more-or-less) the whole thing in one go, especially if you want to...

In a 'graded' way.

What they said : Although causality between psychological factors and HrQoL cannot be ascertained, our findings underscore the importance of holistic DGBI-management that extends beyond symptom-control to encompass the full spectrum of patient-experience. What they should have said: As...

This is consistent with emerging international evidence, with a recent systematic review of 8 randomised controlled trials [15] finding that exercise therapy in Long COVID populations is safe and not associated with adverse events. Between the appalling dropout rate, and the failure rate to...

If I lie on my back with a pillow under my head, after maybe half an hour I get neuralgia (term? the arm equivalent of sciatica) in the left forearm and hand severe enough to prevent sleep, and quickly becoming intolerable if not relieved. Take away the pillow, or change to lying on my side...

i. the development and psychometric evaluation of the toolkit assessments, Phase I successfully co-produced psychometrically robust tools with patients and clinicians. There it is. This has nothing to do with any benefit for us. By funding this phase, this enables the MEA-CAT to move from...

Rutter wrote some nice short choir pieces. I wish him the best.

Far as I'm concerned it ticks all the boxes. It's a cult by any other name, and a particularly insidious and cruel one. Yep.

It is a deliberate childish snub. A petty transgressive FU. They are basically just making it up as they go. It has been their whole act all along. Yes. Such bald-faced propaganda and dishonesty has to be called out. Including the journal's peer-reviewers and editors for letting it through...

Or they are simply not looking in the right place.

I was diagnosed with sleep apnea a few years back, via a sleep study. It was due to structural blockage in the nasal cavity. Had surgery for it, and a subsequent sleep study showed it fixed the issue, by that standard. But it made no difference to the ME/CFS/FM symptoms. Nor, frankly, that much...

This. I would also suggest not posting a comment immediately after writing it. Leave it overnight, or for a day or a week, and revisit it before posting.

Nasty dishonest stuff. :mad: But not surprising.

The most prevalent symptom, fatigue, was moderately related to participants’ ADL ability. Yet another reason not to concentrate too much on fatigue for research or therapeutic purposes. Nor to rely heavily on defining conditions entirely by symptoms.

In contrast to the biological factors influencing FND development, our study can provide less insight into the role of psychosocial influences, although these were likely contributors. How the hell can they draw that conclusion?

Chronic fatigue syndrome (CFS) is a chronic illness marked by severe, medically unexplained fatigue. Cognitive behavioural therapy (CBT) moderately improves fatigue and functioning. Starts badly and quickly degenerates from there in an entirely predictable manner. That it has Chalder's name on...

And @ME/CFS Science Blog ?

Just another 'How to better lie to patients (and ourselves)' marketing product.