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From the article: "Looks like Long COVID victims were intentionally overlooked." It seems governments go to action, or in this case inaction, on publicizing the existence of Long COVID has helped lead to this chronic, debilitating health condition. Perhaps if information about this phenomenon...

Agreed. The article says lactate production increases when demand for ATP and oxygen are in short supply. My legs become very painful, when climbing stairs and small hills. So not after a run, just a bit of normal walking. In PEM, my legs can be very painful just walking on the main floor of my...

Downsides of going to the office have been listed in others' comments. Also, open plan offices, those prevalent pens where employees are treated like children, are not conducive to getting the job done. Too much noise, too many distractions. And, moments of interaction can be negative or...

:thumbup:

Thanks for pointing this out, @Kitty. I've seen this. Not about weight. But going solo can be a problem with any type of pro who is inclined to bully. Say, loans officers as an example, as well as docs, nurses, you name it. Particularly bad when the interaction affects one's health care, or...

Exactamundo!

Good someone is out there advising about this bias. I've heard a doctor cast aspersions on patients solely because of their weight. I know that criticism about weight can prevent getting to the crux of the health issue, even when life threatening diseases are involved. I don't know how over...

Thank you @Mij for this very interesting article. At the everyday level we have contradictory beliefs that women are tougher than men when it comes to the flu and colds, but also that "women run to the doctor for every little thing". It would be a huge accomplishment if science could change...

The following study uses the Fukuda cfs criteria to ascertain whether "cfs" and MS coexist in some patients: . 2014;35(3):529-34. doi: 10.3233/NRE-141146. Multiple Sclerosis/Chronic Fatigue Syndrome overlap: When two common disorders collide Tarek A-Z K Gaber 1, Wah Wah Oo 2, Hollie Ringrose 3...

Thanks @Andy. I seem to recall another article comparing ME and MS. I will have a look for that.

Here is a 1992 study that indicated brain lesions on MRI. There is a new study in the works looking at the brain, that was mentioned on this forum. More attention should be paid to this, instead of dismissing it. 1992 Jan 15;116(2):103-13. doi: 10.7326/0003-4819-116-2-103. A chronic illness...

Yes, you're probably right. :facepalm:

I think the IOM/NAM should be notified of this misinterpretation of its Report. Perhaps someone in the Forum with some medical "street cred", would be better positioned to do this than me.

Apologies for humour here, but I pictured "remote sampling" as a lab tech using a VERY long needle to gather a blood sample. :)

@rvallee I am also shocked by medicine's lack of curiosity. Maybe part of the problem is how medicine is structured. There are disincentives for being curious. No time, no money, sometimes ridicule from colleagues and the powers that be.

Concerning if they are substituting the terms "ME/CFS" for "neurasthenia" in reference to the 2015 IOM ME report. It does look like that's what they've done. The IOM reputation then lends credibility to this soup/salad. ETA: should say substituting the term "neursathenia" for "ME/CFS".

Oh boy...type A again. And sprinkled with some physical symptoms for flavour. What a salad! So these are obnoxious, dreadful people who have made themselves sick. That's convenient for research, BPS treatment, and saving governments and disability insurance payments.

Thanks for your reply, @Adrian. This suggested evidence of demyelination in MRI brain scans for pwME, makes me wonder how many people with ME, first get a MS diagnosis or vice versa. If I understand correctly, these punctuate lesions in the brains of pwME are the white spots dismissed...

Merged thread @Adrian, you probably already know this, but I thought I'd mention, as well as MS, there is also the potential to find suggested demyelination with ME patients. The Overview for the Canadian Consensus Criteria, https://www.mefmaction.com/images/stories/Overviews/ME-Overview.pdf...

I know what you mean @Wyva about so few advocates. In my experience, politicians rarely hear from ME advocates. There are so few, they are sick, and trying, on top of ME advocacy to keep some semblance of household going, maybe some engagement with friends and family etc., etc. Some close to...