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  1. Arnie Pye

    Joint Action Towards the European Health Data Space – TEHDAS: Opportunity to apply to be a stakeholder ends 21st March 2021

    Oh yes - I forgot about that. I was thinking specifically of the information that is actually in my records, in all its inaccurate glory.
  2. Arnie Pye

    Joint Action Towards the European Health Data Space – TEHDAS: Opportunity to apply to be a stakeholder ends 21st March 2021

    They could also start by training doctors to write more accurate records too. If I was going to score my own GP records for accuracy I would give them about 5%.
  3. Arnie Pye

    Covid-19 vaccines and vaccinations

    Vaccines haven't been around for eight months yet, so how has this data been acquired? Or have I misunderstood the timeline involved?
  4. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Referring to post #3868 ... This is the first reference I can remember seeing to an Institute which has Tony Blair's name tacked on. Since he is/was a politician and has no medical training his name being involved actually puts me off reading what has been published. I realise this probably...
  5. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I just took a look at that Reddit thread. I'm not impressed.
  6. Arnie Pye

    BPS attempts at psychologizing Long Covid

    How does the presenter of that video know that raised cortisol is the fault of the patient's life choices and not a direct effect of having had Covid?
  7. Arnie Pye

    Trial By Error: CBT and Irritable Bowel Syndrome

    For those who don't know... https://en.wikipedia.org/wiki/CE_marking
  8. Arnie Pye

    Clinical Characteristics, Activity Levels and Mental Health Problems in Children with Long COVID: A Survey of 510 Children, 2021, Buonsenso et al

    One thing that increases depression and anxiety is being disbelieved about health problems and as a result getting no treatment. I don't know if children are believed more or less often than women. I remember being disbelieved about how ill I felt, or how much pain I was in, as a child and as a...
  9. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is the health problem, disease, injury invisible? Then draw the line there and throw them in the psychogenic garbage can.
  10. Arnie Pye

    Clinical Characteristics, Activity Levels and Mental Health Problems in Children with Long COVID: A Survey of 510 Children, 2021, Buonsenso et al

    This kind of question or uncertainty baffles me. I remember being terribly depressed when I was a child/teenager. I even told my parents about it, which was incredibly rare for me, so I must have been feeling really terrible. The response was "Children can't get depressed! What have you got to...
  11. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I think the poor, the working class, and many women aren't trusted and never have been, and in recent decades this has been getting worse and worse. There is this stereotype that they (the poor, the working class and women) are always "yanking the chain", malingering, lying, attention-seeking...
  12. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    As a child I used to get tonsillitis frequently. My temperature would sometimes rise to 104F. I have always found fairly high fevers like that would cause what I now describe in my old age as brain fog. Since that time I've had brain fog caused by other situations and the symptoms aren't always...
  13. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I always find it very strange that many, many healthy people don't understand brain fog at all. And yet as soon as someone gets brain fog for the first time they have absolutely no difficulty in understanding what they have. I realise that the symptoms of brain fog might differ from person to...
  14. Arnie Pye

    The dangers of sitting?

    This might be of relevance : https://www.bbc.co.uk/news/uk-england-leicestershire-50170687 Title : Patients to stand up at GP appointments in Loughborough University trials The idea, apparently, is to make appointments even shorter than they already are. But of course, the idea of actually...
  15. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Summary of how Covid affects the body in the short and long term. Source : https://www.chinadaily.com.cn/a/202007/31/WS5f237414a31083481725d51f.html Edit : I've just noticed that men are covered by this picture, but women aren't. In other words, the testes and male fertility get a mention but...
  16. Arnie Pye

    Persistent Suffering:The Serious Consequences of Sexual Violence against Women and Girls, Their Search for Inner Healing.., 2021, Sigurdardottir et al

    I'm curious - how is this diagnosed? Edit : I have no objection at all to anyone spending time investigating the long-term consequences of sexual violence - physical and mental. But why must it be turned into something mystical?
  17. Arnie Pye

    Tinnitus treatment and management

    My tinnitus does vary from time to time. And since I can no longer hear my tinnitus relaxer gadget with all the nice sounds on it I'm thrown back onto trying anything I can think of to help me ignore the sound. I can't understand or explain it, and I don't have any logic for it, but I've...
  18. Arnie Pye

    Hypothesis: COVID-19: A methyl-group assault?, McCaddon and Regland, 2021

    They were obviously losing a lot of money since sci-hub was created. Elsevier won a court case (last month) against Talk Talk which forces Talk Talk to block access to sci-hub. Since then the ruling has been applied to or by other ISPs including my own. This has involved blocking sci-hub domains...
  19. Arnie Pye

    Hypothesis: COVID-19: A methyl-group assault?, McCaddon and Regland, 2021

    I've read that in the UK patients are very rarely taught by their GP surgery how to inject B12. As a result many people who want to inject will learn from Youtube videos, having sourced their B12 ampoules online. But it isn't as easy or cheap as it sounds - there are still the needles and...
  20. Arnie Pye

    Abdominal pain in children: the role of possible psychosocial disorders, Spatuzzo et al, 2021

    So this paper, if I understood it correctly, was studying abdominal pain in children and were specifically sorting patients into organic and functional groups, and then following up the functional group. There isn't a single mention of "We diagnosed X children with a functional disorder but it...
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