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No way I could do a 40km bike ride, or any comparable physical activity, without very serious payback, and the real risk of a permanent worsening of my health status.

Grossly defamatory, even. Increasingly my view that Garner is likely to be a self-limiting problem. He is trashing his reputation far faster and more comprehensively that his critics could ever do. He has become an evangelical fanatic, which rarely ends well.

One of my biggest wishes for ME/CFS is for a good in vitro test for PEM, using a tissue or fluid sample. That would do the job nicely. Then they could research it to their heart's content, without any risk to the patient. Also raises the possibility of a cheap at home test so that patients...

Samples were taken at rest, peak exercise intensity, and 15 and 60 minutes post-exercise. Would like to have seen a 3rd set of samples taken 24 hours after the 2nd CPET test (without doing a 3rd test). Otherwise it looks interesting.

Recovery Norway is full of people who have recovered from mind-body retraining packages and cognitive approaches. There are recovery stories everywhere So why are they not showing up in treatment studies, including those done by your fellow travellers (the studies they could be bothered to make...

I don't think that is a fair characterisation of the views on cannabis.

Thank you (and to your co-authors) for taking this issue seriously. It isn't just us being hyper-sensitive snowflakes. Unfortunately, as we have learned the hard way, the language and politics of it all matter very much and have to be taken into account. We have all seen and experienced many...

And worse than that.

Thanks.

biopsychosocial

It was developed following the framework of Central Sensitivity Syndrome, So, a bust from the start.

What is the difference between Rituximab and Daratumumab?

Was told once by a senior researcher in materials science that when he gets a paper to read he goes straight to the methodology section, and doesn't read the full paper until he knows it is worth reading. Said it saved him a lot of time.

Indeed. The best way to clear muddied waters is to stop stirring it up.

A very tightly circled bunch of wagons indeed.

"Adjustments by Open-OH:An SBRI follow-on funding to develop an evidence based interventions [sic] for Mental Health." Anybody need more evidence about what is really happening here? It is beyond clear that the government is still happy to treat ME/CFS, et al, as a psycho-behavioural problem...

Dr. Jason Busse has established multiple connections to the insurance industry through his clinical practice, research, and advisory roles: Enough said. :grumpy::thumbsdown:

After more than 40 years of dealing with it all I still don't know what to say when somebody says 'you are looking good/well', when in reality I can barely stand and am heading directly home to crash. :confused:

That makes a lot of sense. Might explain why – at least for me – getting into action is hard, but continuing it at least somewhat easier, leading to both appearing (relatively & temporarily) normal once moving, and also easily over estimating how much I really can continue the activity without...

I have not lost strength, beyond normal expected for my age (early 60s). I have lost stamina, and nothing I have tried brings it back. There is a hard ceiling. It would not be surprising if some deconditioning was going on for some patients, mainly at the severe-very severe end of the spectrum...