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Yes. I’ve never seen an ‘expiration date’ set like this.

How convenient.

Agreed. It’s also telling that they deliberately chose not to do what most trials these days do which is to obtain written consent for data sharing. Not that it’s even necessary to reanalyse the original dataset in this case. Unlike in PACE where the data analyses were fraudulent, here it’s...

I just noticed this: “Bona-fide researchers” meaning all data requests from filthy plebs (ie patients) will be denied.

The paper claims that symptoms caused by surgery are psychiatric.

This idea was quite popular in the 1980s/1990s in the UK. There were some studies showing hyperventilation on exercise challenge or tilt table but ultimately it did not pan out and even BPSers don’t really talk about it these days.

This paper is pretty obscene to be honest. First you suffer medical malpractice, then you get told it’s all in your mind.

Sounds like incompetent anaesthesiologists trying to chalk up serious adverse events to FND.

What fresh hell is this?

It's unethical to continue to sell this test to patients considering the findings of the more recent study:

Usually these sorts of studies are done by young healthy trainees in psychology. My fibromyalgia pain is worse than what I experienced after surgeries. I don’t see how exercise is possible in this scenario, let alone desirable.

That’s hilarious.

“Young and female? It’s FND. I don’t accept this referral.”

I don't think this study tells us anything useful. You can't do a GWAS study with ~400 participants.

Same here, back in 2016 or so. The effect was dramatic, from housebound to being able to walk reasonably comfortably for an hour. I also noticed an immediate effect on muscle weakness: within 10-15 minutes of taking a high dose I could squat and get back up with ease, something I couldn't do at...

This 2007 study from the Journal of Psychosomatic Research to my mind suggests that retrospective subjective symptom reporting in MUS is useless. People seem to report what they think they know about themselves (personal semantic memory) rather than events they remember (episodic memory). Hard...

Very interesting.

It’s remarkable that the authors don’t consider, not even for a moment, that this could be anything other than suggestibility. What if FND is linked to autonomic dysfunction?

Pretty conclusive evidence of these antibodies not being the cause of our symptoms. The fact that this test is being sold to patients is a disgrace. (Btw I don’t know if others here experience this but sometimes I look at an old thread and am shocked to see a post I made that I don’t recall...