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Illness behaviour. I always had a strong dislike for this term. You’re not ill, you’re just behaving like an ill person. To what end? I have lost literally everything thanks to my “illness behaviour”.

Same here. And to this day my mother refuses to acknowledge that there is anything in particular wrong with her even though her activity levels continue to decline, especially now as she is getting older. When you ask her why she can’t work, can barely do any housework and rarely goes anywhere...

Catatonia and ME/CFS don't look anything alike but it certainly caught my attention that there are apparent responders to lorazepam and aripiprazole in our community. Both these drugs are used for catatonia (especially the former) even in cases where catatonia is due to an identifiable...

Sickening stuff.

I have not donated to OMF in a long time after seeing the false hope being whipped up every year.

That would be my worry also. Mild elevations of CRP are common in some types of depression. It tends to be within normal range in ME patients. Hopefully this won’t be used as a pretext to say patients should exercise more to bring down inflammation. :confused:

There was huge hype surrounding the “something in the blood” and nanoneedle. Before that, they hyped the Naviaux metabolic study and the OMF replication of that (still waiting for that to be published 4 years later lol). Then they hyped the metabolic trap hypothesis. Then they said it was a...

That was the most interesting part. You see it with long Covid now too where they’re throwing their own under the bus. Even healthcare workers are disbelieved.

Isn’t CRP typically normal in previous studies of ME/CFS?

I guess he has redefined the word “prove”. Meanwhile, in the rest of the world, patients are getting sectioned and forced into exercise precisely because there is no published replicated proof of anything.

Cyclophosphamide didn’t work either. It was an unblinded study with modest improvements well within the range of the huge placebo effect we saw in the rituximab studies.

So sorry to hear about your family’s suffering. I was just implying that ME/CFS is unlikely to be autoimmune. My understanding is that B cells have been researched in depth and nothing has been found. That, combined with failure of Phase III ritux trial makes it an unlikely hypothesis. I don’t...

Oh dearie me.

LOL https://www.rte.ie/news/coronavirus/2020/1230/1186937-vaccine-covid/

Political decision. They never would have approved this junk if it had been invented by a foreign country.

Excuses excuses. These people don’t do trials because they know that the treatments don’t work.

Patients with comorbid depression should be excluded from a trial of aripiprazole because this is a recognised adjunctive treatment for depression.

From what I gather, if the victim has an MD after their name, then their postviral syndrome is real and needs urgent NIH funding. If the victim is just some pleb, then that person has a psychosomatic issue and needs a gym membership.

Yes but if people are saying they are getting positive effects from 0.2 mg and such microdoses, assuming those effects are real, then they can also get harmed by the same dose. Published literature is irrelevant.

As an infectious disease doc I imagine she has seen PVFS and ME/CFS patients in her career. Based on her statements here about exercise, she probably fobbed them off with terrible advice and now that she has PEM herself she still doesn’t grasp what’s going on, she is still dismissing others...