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I think another part of it is that our diagnosis is highly stigmatised and therefore very low status. People, consciously or not, don't want to be associated with that in any way. In addition, doctors are taught during training that if you ignore "functional" symptoms, they improve. Any...

It's quite an insidious trick that guys like this are up to and I'm sad to say it's working to hoodwink a lot of people. They present themselves as brave enlightened warriors against the nasty old medical establishment that told people with unexplained symptoms that their problems were 'all in...

You're right Mij. When I was in the process of becoming disabled & diagnosed, all the doctors, nurses, psychologists etc. that I had worked with (and in some cases also been friends with) for years instantly threw me under the bus. It was like being accused of witchcraft in medieval Europe...

It's like a deja vu seeing a whole new cohort of perplexed, frightened people who until recently thought they had rights and that the medical system was there to help people running into the same wall of lies and abuse we've been dealing with for decades.

Lol

Years ago this guy published a study testing his persistent arousal hypothesis of CF using clonidine. If I recall correctly, in that study activity levels also declined in the intervention group. I don't recall if it was statistically significant but the graph was rather startling. Undeterred by...

Fauci and the other NIH swine were dismissing ME/CFS for decades before this grifter arrived on the scene.

The aim of these newfangled names for MUS is to get the patient to accept the diagnosis.

So basically cats get better healthcare than humans with unexplained neurological symptoms.

Good stuff. Quite a few metabolic disorders can present as psychiatric, at least initially.

The scatterplot looks like there's nothing there to hang your hat on.

"rehab" :arghh:

Yup.

Speaking of warts & quackery, about 20 years ago I got one on my thumb. It was there for about a year and drove me insane with the constant urge to pick at it. A friend saw it one day and told me her elderly mother had a plant in her garden that gets rid of warts. I was extremely skeptical but...

What on earth... Something's gone terribly wrong somewhere along the way in the medical arena.

The worst thing about having ME is that you can't even accept counselling support provided by the state because a) the energy expended to get to and from the appointments would be self-defeating for anyone who is moderately affected or worse b) they would try to push THEIR false illness beliefs...

I'm so sorry to hear about your nightmare, Graham. I hope you get to the bottom of this. It sounds like continuity of care in your area leaves much to be desired.

All this sounds eerily familiar. And the medical profession seems to be funnelling people into unproductive psychological counselling etc. I wonder how long they'll be able to continue to deny the existence of ME/CFS for now that we're apparently facing a new tidal wave of cases...

Excellent idea. If many people develop ME/CFS after this epidemic, it will be much harder for the BPS lobby to claim it's all due to false illness beliefs.

But these patients were not experiencing spontaneous recovery. They were mildly improved at best and as Trish pointed out the results were comparable to the placebo arm of the RTX trial. Their SF-36 score was still terrible compared to the median score in the general population. I strongly...