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Or in our pockets!

Oh right yeah I guess that isn't immune mediated in the same sense. Although to be fair that lot are if anything overly optimistic about finding a drug.

I guess I'm just not sure how this disease could NOT involve the immune system in some way. Considering the symptoms and the fact it seems to usually be triggered (and often worsened) by infection.

That is what I had heard regarding new drugs, but then I had an exchange with Jonathan last year where he laid out a 'reasonable best case scenario' of how a finding in DecodeME could lead to treatment...

I'm not sure what your argument/rationale is for posting this? Is it just general doomerism? Or is it about whether the Norwegian approach vs finding drug targets first is better? Because I do not see why there should be a binary here. It is perfectly possible to believe the Daratumumab trial...

thank you, appreciate it

He mentioned planned drug trials in another interview a few days ago too.

I think the interview quoted above shows both what makes O Sullivan a paticularly ghoulish example of the BPS cult and also how she exposes their weakness more than say, Alister Miller or Simon Wessely. O' Sullivan nakedly and unashamedly lays out just how wildly expansionist psychosomatic...

Does anyone know the status of: Wes Elys Baricitinib trial The DOD Bezisterim trial Paul Hwangs WASF3 work With regard to funding in view of the recent cuts?

I've missed the chance to sign up to this, is there any info about whether the talks will be put up online? Very interested in the artificial 3D muscle talk.

I'd just like to bump my question from a few days back considering possible tgf-beta link in the fibro paper from today and general tgf b talk that's going on atm. To put it more clearly than I did above, is there a way of pushing for a larger cytokine study that could replicate this paper, if...

If this replicates previous findings and gels with the emerging picture as @Jonathan Edwards says, is there a way to get the ball rolling on the larger cohort cytokine study? Is it something patients could crowdfund? What about charities? Or wealthy donors? It seems like it could be important...

I hadn't even considered that Edinburgh might be affected! DecodeME and LOCOME are UK funded, so this must be something else? Maybe they were planning on working with Edinburgh on a US LC or ME GWAS? I know Ponting recommended it in his research roadmap presentation a couple of years back. Or...

That is absolutely criminal. If that follow up had been done we might have had a head start on understanding ME and therefore long covid by 2020.

Was this ever replicated or followed up on? Apologies for confusingly quoting it, brain fogged today and my formatting is suffering

Very well explained thanks! So is it just lowering the odds of long covid, as being vaccinated seems to? Or is it protective in some other way?

Wessely is chummy with Jon Ashworth and of course came to prominence during the Blair years so its perhaps not surprising that the government seem to be following the BPS 'acknowledge it but play it down and publically fence sit on whether its physical or mental whilst acting like is mental'...

Interesting! Thanks for digging that up! P.s. do you mean 'presenting proteins' or 'preventing proteins'

I can't see where it says the drug is Anakinra

Have PrecisionLife said what the protective genes they think they've identified in ME/LC are? It would be so interesting if HLA-A*03 was associated with them