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It is interesting that they found CD38 and IFNy in severe and not in milder patients..

I find this line of inquiry extremely concerning. The idea that mild and severe are different diseases seems totally illogical to me. You would have to discount a lot of patient testimony to even consider it. Personally, I was mild for three and a half years before becoming severe. I slowly...

I hadn't heard about this! Was this Fluge and Mella too?

How great would it be if this turned out to be true/causative?

This man has entirely too much influence.

I think it could be either. Hopefully preliminary results in two years.

A huge amount of the long covid phase 2 drug trials took around 2 years.

Yes it tends to occur when my PEM is worse

Although it says 2030 completion on the clinical trial site are we really sure it's going to take that long? Seems ages for a relatively small phase 2.

Hers she says feels like she's been drugged. Like it doesn’t feel like normal falling asleep. And she sleeps for a couple of hours typically when it happens. It's been the case since I met her, 2 years before we got ME but she had had post viral illness before then after glandular fever.

I don't really know much about either

How would one test this hypothesis? Is it something that can be measured somehow or would it be a therapeutic experiment? Do you mean several different ME/CFSes or different diseases like ME/CFS, narcolepsy and cataplexy all sharing the same mechnism?

Do you have any idea what it could indicate?

This thread has been oddly reassuring as I thought it must just be me!

Interestingly i began to have paralysis episodes when I was still mild but beginning to deterioate a bit, but only in very bad crashes. Much more frequent now of course. I get the dystonia too. What makes you speculate that it is a key feature?

Just anecdotally, I have episodes of temporary paralysis when I crash, and I know others do too. My partner who is also a pwME has episodes where she falls asleep very quickly in the daytime that do not feel to her like the regular feeling of getting sleepy and taking a nap. She has never been...

How bizarre - I found the T cell one, thought it probably wasnt that, looked further, found the autoantibody one you linked and then accidentally linked the T Cell one instead! I suppose I had both tabs open. Damn brain fog!

Ah - I assume you mean this one:

Is this in a published paper or forthcoming?

He claims its in a paragraph near the end of a paper, not sure which one. So i guess no data are provided. Yes I'm aware r.e. health rising, I was more wondering in terms of Lipkins claims about his work than any editorial spin that might have been put on it.