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There was also that systematic review discussed here on the forums a few months back where the search terms they used for the database search were FND, conversion disorder, hysteria etc.

That was the first concern that came to mind as I read the announcement.

The leading proponents of FND (those considered enlightened by the FND patient community) most definitely view it as synonymous to historical diagnoses of conversion disorder and hysteria. The difference is that they de-emphasise Freudian narratives about the wandering womb, conversion of...

They must be panicking about the economic impact of long covid. This initiative won’t work. You can’t wish away your disability.

I take it these people haven’t kept up with Anglosphere literature and debates re: GET. This reads like something out of a time capsule. It’s completely disconnected from where we are as a field.

From Brian Vastag’s thread. Very worrisome and yet totally predictable outcome. I remember reading the original protocol and thinking no one with actual severe ME/CFS will be able to endure this.

I don’t think this will work. You can push the heart rate down in POTS, but you’re still sick at the end of the day.

SPS sounds harrowing. I bet many of them get diagnosed with FND. Neurology seems to struggle with inconsistent or variable symptoms.

I’ve been around for far too long to get excited about any announcement. Call me jaded but none of previous BREAKING NEWS moments have panned out so why get my expectations up.

Cochrane sucks these days, and not just for ME/CFS. I was reading through some of their recent protocols for reviews in a field I’m in and was quite shocked by how badly done they were.

The bit about resting & enjoying it, it’s a shocking thing to see in an scientific paper. I hope it’s just non-native English, not malice.

The team are wasting no time putting valuable work out there. Impressed.

Cringe indeed. 20 years of work in the field? What has he got to show for it? Has he ever helped a single person with his “research”?

MTHFR is such a blast from the past. There was a time about 10-15 years ago when it purported to be the explanation for everything in alternative medical circles. Half the population have the “mutation”. I am amazed anyone actually sat down and typed all this nonsense in 2023.

ME/CFS diagnosis is something you generally stumble upon yourself when you are searching for answers online. It’s not something that’s easily doled out by doctors. I think lower SES/lower educated people get sent to a psychiatrist.

The government is designing research studies using “cookie-cutter testing” because they know in advance that the tests will turn up nothing and they can deny the huge deluge of disability claims by using this fake research as evidence that long Covid is fake.

The idea that something could be accomplished by stimulating the trigeminal nerve goes back to 1990s and Goldstein. No idea why they’re using buzzwords and saying incorrect things like There is no systemic inflammation in ME. No immune abnormalities reported in ME have ever withstood...

Not surprising to see that a billion has been squandered. I never expected that any useful information would come out of these studies. Most research these days is a scam to keep huge academic bureaucracies going.

Very concerning to see these data come out years after the initial push for everyone to take AZ and the anti-vaxxer accusation at anyone who questioned the lack of long-term safety data. A friend of mine had huge deterioration in health after AZ. Whether it was a coincidence, who knows.