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Lol

Years ago this guy published a study testing his persistent arousal hypothesis of CF using clonidine. If I recall correctly, in that study activity levels also declined in the intervention group. I don't recall if it was statistically significant but the graph was rather startling. Undeterred by...

Fauci and the other NIH swine were dismissing ME/CFS for decades before this grifter arrived on the scene.

The aim of these newfangled names for MUS is to get the patient to accept the diagnosis.

So basically cats get better healthcare than humans with unexplained neurological symptoms.

Good stuff. Quite a few metabolic disorders can present as psychiatric, at least initially.

The scatterplot looks like there's nothing there to hang your hat on.

"rehab" :arghh:

Yup.

Speaking of warts & quackery, about 20 years ago I got one on my thumb. It was there for about a year and drove me insane with the constant urge to pick at it. A friend saw it one day and told me her elderly mother had a plant in her garden that gets rid of warts. I was extremely skeptical but...

What on earth... Something's gone terribly wrong somewhere along the way in the medical arena.

The worst thing about having ME is that you can't even accept counselling support provided by the state because a) the energy expended to get to and from the appointments would be self-defeating for anyone who is moderately affected or worse b) they would try to push THEIR false illness beliefs...

I'm so sorry to hear about your nightmare, Graham. I hope you get to the bottom of this. It sounds like continuity of care in your area leaves much to be desired.

All this sounds eerily familiar. And the medical profession seems to be funnelling people into unproductive psychological counselling etc. I wonder how long they'll be able to continue to deny the existence of ME/CFS for now that we're apparently facing a new tidal wave of cases...

Excellent idea. If many people develop ME/CFS after this epidemic, it will be much harder for the BPS lobby to claim it's all due to false illness beliefs.

But these patients were not experiencing spontaneous recovery. They were mildly improved at best and as Trish pointed out the results were comparable to the placebo arm of the RTX trial. Their SF-36 score was still terrible compared to the median score in the general population. I strongly...

Yup, a 'scientific' seal of approval of sorts. That would be really scary and harmful.

Ok so they were "mild-to-moderate" not mild. The subgroup of responders was doing 3,600 steps per day on average before the treatment. That's quite a lot considering that half of the general population walks less than that...

It's hard to know what to make of this. On the one hand, we know that this therapy has been around for, what, 20 years and that thousands of ME patients have spent money pursuing it. Many new people get roped into doing it each year and we've heard reports of patients being pressured into doing...

We've been down this road before with open label rituximab studies before the blinded RCT showed it was trending toward being worse than useless. The results here are strongly suggestive of a spontaneous improvement / regression toward the mean / placebo response in patients who were probably...