Search results

And in health care encounters in general.

Something I wish doctors would pay more attention to, instead of complaining how «youths today say they are anxious when they mean nervous, depressed when they mean sad» etc and that people supposedly use «clinical labels» just because. As if they are any better. Then again obviously I think all...

Same rules as in Norway it seems. And we have no private alternatives.

Bonferroni correction is also extremely stringent. Not everyone thinks it is useful to be that stringent. But that’s another discussion.

I can have days like these as a mild person. For example no symptoms when sitting down, but I will feel terrible if I try to move and might even need assistance such as supporting myself against furniture or a wall. Other days symptoms will be present also when being still.

Following up on this: in Norway there has been a huge increase in consultations for «fatigue» and various diagnostic codes that have traditionally been used for ME here following the start of the covid pandemic. So many seem to be susceptible of «something» following infection, although it might...

I’m too far removed from the field and never worked with GWAS to comment on the specifics, but wanted to say a regulatory sequence can be downstream of a gene too.

Another thing on the potential mislabeling of pwME/healthy in the analysis is that we don’t know how common it is to have (very?) mild ME/CFS that’s not diagnosed. Maybe some people just take longer to recover? Maybe they have sleep issues after having overdone it. Maybe this is temporary for...

@SNT Gatchaman But still there was the case of the patient with Creutzfeldt jacobs (?) that was discovered after their death where «functional overlay» was still claimed to be cause of at least some of the symptoms they had suffered from. There is a thread on it here somewhere.

I’ve been screened multiple times for MS due to how my ME symptom presents. I’m around my 15 year mark now (I didn’t get an ME diagnosis until maybe eight years after first symptoms). With FND and «we won’t test for the same again to reduce cost your anxiety» becoming prevalent in healthcare...

Yes, we can't forget there is an underlying issue with the "traditional peer review standards" to begin with.

Tragicomic to say it needs to be for the public when doctors can be just as bad, and contribute to the stigma themselves by for example denying other causes of blood sugar imbalance than "poor lifestyle" (for example a viral infection). There's some similarities to our case in diabetes.

It also makes medical professionals automatically discount post-tick bite meat allergies, because anything tick related is seen as bogus. And meat allergies can be tested for with a blood test, it's not in the same "there's no biomarker" field as the rest of the post-infection/insect bite stuff.

I don't know how it is in other places, but I experienced pressure from councillors to show up for social activities and contributing to the psychosocial environment through attendance. Apparently such things reduce drop-outs. I never got through when explaining that I did not have the...

I've both had to stop my education/drop out of school and finished university-level education ahead of time. In one of my degrees courses where laid out one after the other, so you would have course A, exam course A, then start course B and do exam B, then course C etc. In another all courses...

Employing a "treatment" we don't know how works (if it does), to an illness it's difficult to assess. It's a frustrating pattern. Sadly, fasting fits into the same type of "pull yourself together"/"just put in the work" moralism.

The «low» prevalence of ~20% was potentially attributed to high levels of physical activity that other studies have found to be protective. Just because other studies have found higher levels of prevalence, calling a prevalence of 20% «low» is problematic.

@Ravn While I can’t recall having been told the Norwegian MEA has a lot if money, us patients are simultaneously able to influence all types of processes while getting nowhere.

What frustrates me is that worries and criticism is voiced, and the reply is again and again simply "look at this process we are following». As if we’re unaware and not voicing criticism despite «the process».

But do people really pivot, or is it simply that they try to answer the question and this is then interpreted by the reader to be "the most important reasons" or whatever? I don't see that the second question in the example would necessarily cancel out the first in the participants' mind. On...