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  1. feeb

    Massage therapies including Bowen Therapy and myofascial release

    Paul Ingraham of painscience.com was a massage therapist and he has a very interesting review of the current state of the literature on his website here that you might enjoy: https://www.painscience.com/articles/does-massage-work.php He also mentions the lactic acid myth. He's very critical of...
  2. feeb

    Video clip of a Australasian conference on MUS, mentions ME.

    There was another thread a while back with a presentation in it that had a list of these "adverse childhood events", and it had everything from being abused to "falling out with a friend". Absolutely anything goes.
  3. feeb

    Heart Rate Variability and ME/CFS

    I've actually been taking a 125mg magnesium citrate supplement daily for about 2 months. It seems to have neutralised the suicidal depression I was plagued with every month around ovulation (the reason I started the supplementation in the first place), but it's not made the slightest bit of...
  4. feeb

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    Yep, I do feel a little bad for the poor student, but I feel much worse for us patients! That CRESTA booklet wasn't written by the student who did the paper either, and these ridiculous notions have to come from somewhere. They're not being invented by students with no input from anyone else.
  5. feeb

    Heart Rate Variability and ME/CFS

    I don't know, I'm afraid - I have very dry skin anyway, so I use a fairly bulletproof skincare regime to control it! The only associations I've made are the usual swollen glands, sore throats, and general-feeling-of-being-unwell, so as you've noted it's strongly correlated with a crash.
  6. feeb

    Heart Rate Variability and ME/CFS

    That's very interesting indeed. Sounds like the same thing. It's always unilateral for me, and always on the right hand side. The actual ringing/throbbing never lasts for more than a few seconds, and it pulses far too quickly for it to reasonably be pulsatile tinnitus. Thanks - good to know I'm...
  7. feeb

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    Of course any sufficiently advanced bureaucracy is indistinguishable from incompetence!
  8. feeb

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    I don't know what BMJ's specific reasons are, but if I had to speculate I'd say it's because it's grunt work, and it needs loads of people to do it. The tools to do the updates are usually very old and inefficient, and it's difficult for managers in charge of that work to build up enough...
  9. feeb

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    He he. Welcome to scientific publishing! I've got stories that'd make your hair fall out. Journals and their editors are one thing, but they can't do a damn thing to a website without going through the IT people first, and the IT people don't care in the least about the urgency of scientific...
  10. feeb

    Heart Rate Variability and ME/CFS

    You mentioned tinnitus. Can you tell me a bit more about that (or link me to a previous discussion of it)? I ask because I've noticed that I get a tinnitus-like something* when I'm at my worst or declining, and I'd be very interested to know if its something more widely experienced. * I say...
  11. feeb

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    No, no, no, they're not saying we need anti gravity therapy. It's the other way around. The want us M.E. patients to get out of our anti gravity machines. Colloquially, we call anti gravity machines things like "beds", or "chairs", and they make our organs float weightlessly, just like...
  12. feeb

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    I'm a current web professional for a (different) scientific publisher, and I can absolutely believe his story. The terrifying state of the systems that these websites run on would send normal people screaming to hide under the bed. Plus his response suggests that they've outsourced the web...
  13. feeb

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    I've been laughing my head off since yesterday at that CRESTA Fatigue Clinic anti-gravity document. I know its not funny because this kind of nonsense could be causing real harm to the luckless sods who end up being treated at that clinic (and it does look like it did cause problems for the poor...
  14. feeb

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    I wonder how it works. I had to replace my mattress recently because the old one had become deformed from use and wasn't comfortable anymore, so the zero gravity effect obviously doesn't affect the mattress, only my organs. Perhaps we project some kind of anti-gravitational field that only goes...
  15. feeb

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    All these years I thought you had to go into space to experience zero-gravity, I had no idea I could get exactly the same effect from lying in bed! Life changing!
  16. feeb

    Do all ME / CFS sufferers have low stamina?

    Same here. It was always my primary limiter during hill climbs when cycling. Very annoying. When I developed M.E. I did indeed develop suddenly very low stamina - I was never a sprinter, largely because of the breathing troubles I'd have during hard efforts. Instead, I was an endurance...
  17. feeb

    Animal Models of ME/CFS

    Squeak once for "much better", squeak twice for "very much better"...
  18. feeb

    Which paper said CBT/GET should encourage participants to no longer see themselves as CFS patients

    Oh, that's easy, you just use some positive affirmations and jump on a circle for a bit. Works a treat, there's a paper about it and everything. Just fish out a couple of thousand from down the back of the sofa and Phil will teach it you.
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