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Donated $200 usd. Will point people to this! Hard buy in for the US without 501(c) for tax exemption!

This post has to be a joke 3 controls and most of the ME/CFS sitting between them. https://twitter-thread.com/t/1965418146329661747 Acting like you can make anything from this…. This guy getting popular and is just spreading misinformation. I’m worried where this will go.

The author brought this up in the talk, how PET is expensive but cheaper than running a patient through 1000’s of tests with no actionable results. Quite a bit of the talk was on how this could be diagnostic. That other diseases use PET regularly I hope they upload the talks soon!

Is this linked at all to the “crunchy” neck and stiffness people sometimes report: https://www.s4me.info/threads/muscle-and-joint-stiffness-worsened-by-activity.45821/page-3#post-636399

Hopefully it’s real, there was no numbers presented just some screen grabs of the PET scans. She also said people thought she was crazy to do full body scan and after her findings she was grateful she did since they saw such odd results. There was brief mention that the odd quadricep results...

The PET presentation I did catch from the Stanford group did not go into specifics this deep, it was more of an overview showing full body PET with TSPO was signalling far stronger and different areas than healthy controls, notably the shoulder/neck area (they alluded to “coat hanger syndrome”)...

@jnmaciuch seems like these will be recorded and posted after, sounds like they are devising their own tracers at Stanford now which was highly interesting.

@jnmaciuch in the Stanford PET scan presentation they are using a new tracer called GPR84. I remember from the Jared younger thread you were versed in tracers. Have you heard of this tracer before? Thoughts on it? Also this new TREM1 tracer seems interesting

Joined late, pretty unimpressed with this Robert Naviaux presentation, seems like a mish mash of mitochondrial buzz words. Also presenting on red blood cell deformation and mitochondrial dysfunction (he works with prusty) as fact.

Watching the OMF Symposium right now Robert Naviaux just presented on this as fact…. What the hell is OMF doing… This guys presentation is a mix mash of mitochondrial buzz words

Any chance you can ask him if it will be 501(c) in English for tax reasons?

I wish science with clinical trials was cut and dry but one thing I’ve learned is that placebo is huge. In my local group a woman was in the Reclaim trials for pentoxifylline she swore she was having stomach upset but was ok with it because she was getting an increase in baseline and could now...

Is there any connection here to the HFE gene found in the DecodeME?

One thing as an engineer that bugs me is this guy Jack markets himself as “ex-aerospace engineer” has never worked in industry, might have a degree but that essentially it. That’s a red flag to begin with for me, selling himself way bigger, reminds me of Silicon Valley hype. Second they don’t...

Other than treating H pylori and parasites I don’t think there really is (naturopaths will throw a fit here). There’s a vague idea of unbalanced flora but no one right now is in a position to “fix” it or say it’s 100% wrong. I had a friend who worked at Ubiome, they made tests for dysbiosis and...

I think there’s tactful ways of doing this. Presenting it weekly on youtube to the patient population of sick individuals with high hopes is not one of those

Whoops I was thinking epigentics for a second. Yes I see now

This is rather naive, but what if depression is a secondary factor . As in you become depressed due to ME? Could this signal be due to being depressed because you have ME? Or are these questionnaires narrowing in on pre-ME depression?

Man I wish there was a way for US people to donate and it be tax deductible. Donations for 501(c) charities always go up at the end of the year for tax reasons. It’s a lot easier to get large donors when it’s tax deductible. How do we get OMF’s eyes on this? Can they allocate funds directly to...

Do we have a page of who ideally is doing “good science” and how to donate? Create a thread on this? Maybe a thread on who you would ideally like to see funding and why?