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Thanks a million for sharing this information! I have just sent a letter to Mme Perreault. When I get news I will share.

AT this point, there is not clinic in Montreal. But I will let you folks know; I will write a letter to the assistant of Dr Moreau. But as is being pointed out there is not much they can offer at this point--maybe in future a drug trial. @Snowdrop--my daughter says her primary miserable...

"Vancouver is home to one of Canada’s three ME/CFS clinics, and a fourth is coming soon to Montreal." ------------------------- Three ME clinics in Vancouver!! How come all the folks I know out west are not getting seen by anyone. And one coming to Montreal. Perhaps Dr Moreau is connected; I...

Yes dear Invisible Woman, yes. I recognise how many other folks endure this, paraplegics, and other suffering people. I am amazed by our so-called humane society that is capable of often just reducing people to something like 'things.' Maybe there is something in the human being that cannot...

This is another brilliant post by Snow Leopard. My daughter has told me that one by one she has had to cauterise, repress, destroy, kill, and deny normal human needs--because the illness simply does not allow for much that is normal in human life.

Can the German members perhaps give some information please. Which Uniklinik--there are many all over Germany. And what nature of 'care' is being offered. Thanks in advance

Is this not what Dr Scheibenbogen worked on? Or am I inaccurate ?

Someone please start a thread on fasting, or reduced food intake, and whether or not this helps in any way. Thanks. Done

Jem, your post is absolutely brilliant. Absolutely. And it bears repeating: "Wanting to euthanise oneself during unbearable suffering is rational not mental pathology." I had a friend, a GP who finished himself off when he received a diagnosis of pancreatic cancer. He was a brilliant man...

This is as old as the hills. My mother developed varicose veins when pregnant with me. Really awful ones. The doctor said, just have another baby asap and they will clear up. Well, they never did clear up and she is now into deep old age and they are still there.

Well, this was written by a health management individual and two psychologists. So, I am not really surprised by this item at all. And it seems to be directed at physicians--i.e how to treat the patient. Actually, the piece that Whitney Dafoe wrote is much better in every way.

What do you make of Dr Chia's thesis? Our family member did have a biopsy taken from the GI tract and it was doubly positive for enterovirus. It was of course not treated, as from what I know there is no anti viral that hits enteroviruses, and Dr Chia is using a herbal, which seems for some...

Michael, actually in the case of our family member, the ME is progressively getting worse over time, very slowly but it is marked. (not due to de-conditioning). I think that you may find many patients who say it is progressive.

As Dr. Teitelbaum once put it: you have to be careful you don't get a psycho therapist.

You are correct. I find talk therapy very depressing; I just sink into despair. In university I tried it a number of times, and it just made things much worse. I guess it has a long tradition, from the confessional to Freud. Now, I enjoy gardening, for instance, and my woes lift when I see the...

I very much agree with you Invisible Woman. It is often a rational choice based on the lesser of two evils. Brilliant post, concise and to the point. People aren't stupid. A life shackled as in chains with unrelenting discomfort, and pain, or a final release. This kind of thinking is not...

. I really agree with Trish and Hutan. It is very important to hear the experiences of other people. How else can we learn anything?! I hope that @5vforest, and @leokitten, and @jaybeen and others continue to report their situation. Similarly, we must hear what the scientists here have to...

If you go to Facebook, and look for Abilify for ME/CFS, a group will come up. Many of the people there are known names to ME. As I told Leokitten, I have only those conversations as a source. I just read, and observe. But if you join the group you too may be able to read about side effects...

Leokitten, I read the FB page rather carefully--it's the FB page for Abilify. So, I am only reporting what I have read there. A few people there took Abilify for ME and a few got 'permanent' tremors. Some had other side effects. I have no other source for this information except that Face...

I am reading the postings on the FB page. I am very concerned to read that a few people are saying they or a family member now have 'permanent damage' from this drug, in the form of tremors, and other problems. I just don't know what to make of a drug that can do this sort of thing. Of...