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  1. Caroline Struthers

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I got the more recent emails (June 2019) between Cochrane and Norwegian Institute of Public Health via a FOI to NIPH. But I imagine they stopped correspondence after the agreement was made that they would publish the review.
  2. Caroline Struthers

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    It was withdrawn in 2018 (I think) and then reinstated because the authors and supporters kicked up a fuss https://www.reuters.com/article/business/healthcare-pharmaceuticals/exclusive-science-journal-to-withdraw-chronic-fatigue-review-amid-patient-activ-idUSKCN1MR2PH/
  3. Caroline Struthers

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Yes. It always fascinated/appalled me when I worked for them that most reviewers of treatments like homeopathy, acupuncture, CBT for just about anything never really laid into the universally poor quality and often blatant conflicts of interest of those carrying out trials of these types of...
  4. Caroline Struthers

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I imagine Ann Milne will reply. For Larun to say the point estimate (-3.4) is clinically significant is very misleading (what a surprise) as the confidence interval is -5.3 to -1.6. In short, this means the true effect could be anywhere between these two estimates. So the true effect could be...
  5. Caroline Struthers

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Ann Milne made another comment on the Exercise review in December and the authors (Larun) have responded....I think this is the first time Larun has responded since 2015 ( https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub9/detailed-comment/en?messageId=447334172) I have...
  6. Caroline Struthers

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    I think Cochrane probably moved because of this whole palaver. It would be possible to get correspondence about it via FOI. That's how we got the emails between Fretheim and Cochrane because NIPH is a public body and Cochrane is a charity and so is not subject to FOI.
  7. Caroline Struthers

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    It was taken away from the "Common Mental Disorders Group" and moved to under the "control" of the Editor in Chief. She was advised by Chris Eccleston from the Pain and Palliative Care group who is a psychology professor specialising in psychological therapies for chronic pain. So he's well...
  8. Caroline Struthers

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    It's the GRADEing methods group which is based at McMaster. https://www.cochrane.org/ms/about-us/our-global-community/methods-groups#g-30 I think it's hilarious that they have listed a Co-production methods group but it doesn't actually exist! Co-production is working in partnership with people...
  9. Caroline Struthers

    When beauty is but skin deep: dealing with problematic studies in systematic reviews 2021 - Cochrane

    He did back down and allowed them to continue with a redraft, but he rejected the redrafted redraft in May 2019 days before he retired. Larun's boss Atle Fretheim aggressively pushed back against the rejection and David retired leaving Karla to handle it. A colleague of Fretheim (Andy Oxman...
  10. Caroline Struthers

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    That warning on the CBT review took me a lot of to-ing and fro-ing to secure. It was I think a last ditch attempt to get me off their back rather than something that is routinely done when reviews are badly out of date. I did ask them to put a similar note on all out of date reviews but...
  11. Caroline Struthers

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    He is not a fan of people with ME. Or maybe he's just a fan of the BPS crowd. Co-founders of Cochrane like Garner, Glasziou and Wessely
  12. Caroline Struthers

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    There is an ongoing investigation into my allegation against Karla SW by a Wiley research integrity team. I have no idea if they will uphold my allegation, but as they are the ones who sell the Cochrane Library licenses, this whole business is not going to impress them much I wouldn't have thought.
  13. Caroline Struthers

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    No I haven't. But maybe when I do my final round up of the whole saga so far and put it on my blog, I'll address it to her, "open letter" style. To bring it full circle.
  14. Caroline Struthers

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    This was the basis of my request to Cochrane to withdraw both the Exercise and CBT reviews. https://healthycontrolblog.wordpress.com/2020/11/24/request-to-withdraw-cochrane-reviews/ scroll down to read the post They refused When I complained about the refusal to withdraw the reviews they...
  15. Caroline Struthers

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    I remember writing over and over to Hilda and Cochrane Editors that as NICE had done a comprehensive review with transparent methods, Cochrane repeating the work was pointless (unless they wanted a different answer to NICE for some unknown reason...??) She said they were definitely doing it...
  16. Caroline Struthers

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Wiley are now investigating my allegation of misconduct about the Editor in Chief of Cochrane Library as Cochrane themselves refused to investigate. So at least that's still live(ish). I am planning to do a summary/timeline of everything that's happened since I first complained about the...
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