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  1. Piper

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    I was unaware of the event and therefore ill prepared to ask informed questions. Again, not a criticism. Probably will get back in my box and stay there for the next one!
  2. Piper

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    A great initial success, well done and thanks. I was wondering as I was reading through the Q and A whether more open ended questions might have proven more conversational? Questions with beginning phrases including 'How much?'; 'In what ways?' 'Which processes?'; versus questions requiring...
  3. Piper

    Huntington’s breakthrough may stop disease

    Huntingtons lives in my close circle of people. I don't have any words to describe how cruel it is. It's been interesting as it's gotten more exposure in the entertainment media here in Australia lately. Twice it's been mentioned accurately in Australian made new drama/sit coms over the past...
  4. Piper

    Huntington’s breakthrough may stop disease

    I saw that article. I wonder how far away it is from being accessible to all? At what point would it halt disease progression? Could it be used on those already in mid to late stage disease? Huntingtons is a horrible disease.
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