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Hi @Trish It's not a recognised News source. It's a blog run by a few people (unclear how many) and interested in science. A cursory look shows that they receive small donations via Patreon and also accept sponsorships and sponsored articles for the blog. They are based in Madagascar.

Great summary, thank you!

Here you go: Mast Cell Activation (UK only) https://www.facebook.com/groups/368740546663534/files/ Check the files for info on practitioners etc. The group is supportive and knowledgeable, and drama free :) (Also see MastAttack (with focus on science) and Mast Movement, both international/North...

Really varies I think but mostly unaware of MCAS as it is an emerging condition. Mine not very knowledgeable initially but was willing to learn. And she was happy when some of the meds started helping my reactions. She felt that for once she could do something after many years of nothing...

I know the feeling, :grumpy: none of us want any more diagnosis! Bear in mind many of us with ME, PoTS, EDS etc also have MCAS. The 'good' part about it is that there are meds and ways to find some relief from it, although there is no cure for it yet. Good luck!

Hi Nathalie Have you looked into mast cells conditions, MCAS or Mastocytosis, or Histamine intolerance? https://www.mastocytosis.ca/en/ There is a multitude of symptoms for some patients, including rashes, itching, shivers, angioedema, reactions to changes in temperatures or unidentified...

Don't even know where to begin. Horrific.