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Oh yes, I agree that it would be difficult for professionals as well. I have 10 years of higher education, which should make me be able to understand most. My hobby atm is reading research papers, albeit my foggy brain makes it a bit hard from time to time. So it is quite telling that I had huge...

Anyone else reacting to the use of the term "gentlemanly"? For a Scandi like me, it seems rather patriarchal, aristocratic and colonial, but I do not know how other people outside UK interpret it. Other than that, I felt Richard made some good points. Cfs_research is a troll, and I reckon...

Thanks a bunch, @Gecko Just getting the idea out there might mean someone will take hold of it and create something useful. Worth a go!

I wholeheartedly agree with your wishes. Perhaps what we need is a small organization or someone who that trains ME associations and other advocates in "how to reach the media with your stories", "how to gain the trust of journalists" and "how to change the media created narrative about ME"? I...

Except, when we do turn to the media boot camp style of advocacy, we are called militant and dangerous. The BPS people own the narrative in Norway, and it takes a really huge effort from several sides at once to get the truth out. Perhaps the decision by the national research ethics committee...

So sad to read this new article at sciencenorway, where it works as indirect marketing for the method and for the clinic that is run by one of the authors. Writing comments on their FB post about the study to vent my frustration :whistle:

Would be a huge improvement from the current peer-review system. At least you can avoid papers not being reviewed at all, as is what happened with the Music Therapy & CBT paper from Norway, where one reviewer "only read the abstract". But also, to avoid groupthink and bias, which might prevent...

Tried to balance the view on twitter. Their twitter account is not very active, but hopefully some will se it and make it more visible. Kungliga Vetenskapsakademien tweet:

Very true. There seems to be several reasons for ME/CFS, and viral infections in the gut, or elsewhere in the digestive system, might be one of them.

Not saying you misinterpreted. I might have misinterpreted. Or we both did. I also strongly agree with the link between IBS and ME/CFS. It is the causality claim I find difficult to digest (pun intended), where they claim that IBS comes first, and then turns into ME/CFS. You might be right on...

I think there should be some additional information about this paper, and also replying to some of the questions from the other comments. I'll give it a go. - When 3/4 authors on a paper share the same surname, some eybrows will be raised, often for good reason. Looking them up, one of them is...