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Why is there no laughing-with-tears emoticon? So magical thinking is actually true, and a young boy who dies a short time after eating a wild animal does so because it was cursed.

I believe herpes simplex lives on nerves and is reactivated by various triggers (including, for me, white hot anger). That an original infection is later reactivated is not contentious, because of course there is a test to prove it.

That is a whole other level @Andy - it’s beyond anything I can understand.

She has children! How can she actually think that other mothers don’t know their own children, or feel differently towards their children than she does towards her own? What would she want for her children if they got ME?

Thank you for posting that @chrisb.

Thank you @Tilly.

Thanks @chrisb. It’s pure BPS. Funny the same ideas are persisting there 30 years later, given it’s a teaching hospital and you would think they are leading research.

So in looking to answer my own question, I found this: https://www.gosh.nhs.uk/file/583/download?token=G6vKoGMO I also note the use of CFS/ME. I’m quite surprised - I thought GOSH was meant to be one of the world’s leading children’s hospitals.

Thanks @Andy. What is the history of CFS/ME and GOSH?

I had not read this before. I wish I had never seen it, but it is better that I know.

@Suffolkres, can you please share a link of some information on the child x case please?

But if ME/CFS is a diagnosis of exclusion, then the diagnosis can not be given until the pathogen and immune function testing has been completed and returned no abnormalities. Besides which, actually doing the testing can uncover missed diagnoses, like celiac.

Thanks @Simone!

It looks so interesting, I wish I could go. Hopefully sessions 1 and 2 (at least!) will be available on the Emerge youtube channel soon afterwards.

What a load of rubbish! From Melbourne as well! Appalling. ETA: I can’t find anything on Dan Guo online- he/she is listed under University of Melbourne but I can’t find anything at all... can you?

To be fair @Hutan, a parent with a child with ME *is* more likely to be anxious and/or depressed if they are confused and scared about their child’s illness, fighting with disbelieving medical professionals and possibly also family members that there is anything wrong, and feeling helpless that...

That’s a huge difference in CBT recommendation in Victoria and the only thing I can think of is that the Royal Children’s Hospital is in Melbourne and has a number of experts with active teaching roles.

Yep @EzzieD, that what I was thinking of...

I remember Keith Geraghty had another story of intimidation by S or W with his employers but I’m not able to find it on PR.

I’d really like to discuss non-allergic rhinitis as well, as it is my daughter’s most persistent symptom. I think the immunological sub-forum is not the best place though, and believe the neurological and autonomic sub-forum would be more appropriate. My theory on non-allergic rhinitis being a...