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I think you are right. My mistake. I had a brief look at a few studies and there was no inhouse funding. I don't know quite where I got the idea.

I don't specifically have a name but I do remember ME action US protesting in front of Columbia when Vogt (I think) was invited to speak at a conference put on by the behavioural unit there.

Yes, though my thinking on this has developed over time. Especially when thinking about why they keep getting funding. As an aside I just checked recently and Knoop and Bleijenberg and I expect if I go back and check Crawley have all been at this 'research' and writing more research is needed...

Flottorp manages to shine a light on the inequality between us as ill people and the BPS lot. They can freely come here and as members snoop around looking for information listening in on what can sometimes be merely letting off steam. For many of us this is our only way of communicating with...

From part of the discussion regarding some limitations: They make a good point that improvement in insomnia for example could be key to a reduction in pain and point it out as a confounding factor. I was looking for information on long-term follow up since people with chronic pain want the...

Another thing I think people like PG get confused over is that the BPS approach is the standard. It has been the norm, the entrenched status quo view for decades. As such it is the view that is in the position of being overturned by a paradigm shift of newer and better understanding. That is...

There's a thread here on his insight here: https://www.s4me.info/threads/prognosis-of-me-cfs-%E2%80%93-by-david-s-bell-md.1668/

Yes, so many people who were ill long before any forum or information on the internet had positive beliefs that they would get better and tried ever so many things. Even now when people get ill there has been so much positive press for exercise (and has done for decades) that I expect there's...

In PG's own words: So what is to be done about the symptoms (he believes) are NOT connected to perception? And how is that recovery if you are still symptomatic? ie "some of the symptoms are connected . . ."

After reading the whole thread I really don't have much of a problem with this provided that the clinicians have been developing a sound understanding of PEM. There will always be some people who are very mild or who are on the way to recovery anyway. If they are working within there limits...

I'd like to see that statement from PG dissected. I don't know anything about confidence in various types of research results but I did find a historical perspective on this from 2012 although I cannot read that much nor follow it all. I don't know how well this does on the subject...

If they only followed patients then anyone who did no show up at hospital is designed out of the study and therefore is assumed to not have LC? Am I reading this right?

You can read about the MLA here: https://www.toronto.com/news-story/10570523-toronto-tech-institute-tracking-long-covid-with-ai/ or here: https://globalnews.ca/news/8612208/long-covid-tracked-artificial-intelligence-social-media-toronto-vector-institute/

Thanks for checking @strategist and pointing out this blatant disregard for accuracy. I'll use your points to make a few of my own in response to these fantasy facts. As we know making any claims about prevalence over time declining is fraught with trouble in terms of how this is being...

If I was Norwegian I'd be checking who are the people at NEM and wondering how secure their jobs are. It has seemed to me that when there's an obstacle in the way the BPS response is to infiltrate the organisation to 'fix' it.

They may be writing a lot but at this point I begin to wonder who and how many are bothering to read their self-serving musings. It never possible to see the whole picture but the milk may have soured on their opinions without science and we won't know until further on in time. It does seem...

Thanks @Midnattsol

I can't seem to find a link to the study itself. Is it here somewhere and I'm missing it? It may well be that Kennair wishes to find out whether this is a viable treatment but if the selection criteria are not sound it won't even be a true study of people with ME so no insight can be gained...

Thanks for that response @CRG it does clarify for me what was being said. I'll give this some further thought.

I take your point but we are in the age where doctors health administrators, politicians (they've always been there) and other allied health people are entrepreneurs so it amounts to the same thing sometimes. But it would be interesting to do the economics of it to see.