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Entrenched is different its that there is no point in having a discussion as arguments are repeated and ignored. I also worry about paralysis - we can't move forward and try things as they may go wrong which seems to be an argument that I am reading here. Sometimes we just need to try things...

Given it is probably quite a diverse group (esp with 12 weeks or longer effects) then this does feel underpowered say compared to the numbers in Decode.

I think there is a relevant point when service research has been show to optimize how different industries work then why would such techniques not be applicable to the medical world?

This is why we need more researchers looking into ME. For example, are there groups who look at managing chronic disease who could be interested in ME as an interesting chronic condition.

Also people who may end up in hospital as a preventative thing - to try to avoid admission.

They may but the importance of having patients on board (PPI?) makes it more difficult these days. Also I suspect they have a bad reputation as everyone knows they have failed to deliver. But as with everything there is a danger that they put in a proposal and it gets good reviews.

I was making a general point about services research and working in industry I see how many areas wouldn't have improved without such research. In my own field for example, looking at how secure software development processes has significantly reduced the number of vulnerabilities and improved...

The proposal there is to concentrate on the biological/medical side and the need to get more people who do research into relevant disciplines (such as omics, immune system research etc) involved in ME research to your point isn't relevant.

I think there are two different questions. One is what would a good ME service look like and can a template be created for the service provisioning bodies. Such a template needs to deal with what help is available now (very little) and the lack of skilled healthcare professionals (hence...

I think that is an extremely ignorant comment about service delivery research (and I'm talking in a general sense here not just healthcare). It really isn't about filling out boxes. Its about how to efficiently and effectively deliver services including developing and using new technologies to...

That is true anyway. I year issues around carers who for example, think they should talk to someone whilst doing stuff - but where that is too much. I don't think virtual wards would be a substitute for carers anyway. What it could mean is some level of overall regular health monitoring without...

e That is not a what they are calling a virtual ward. These definitions come from https://pmc.ncbi.nlm.nih.gov/articles/PMC9835137/ (and a table - service terminology used in practice) The remote monitoring seems to be a very important part so that patient information can be regularly...

I think there is a question about what people would find useful in terms of things like home monitoring - I'm assuming that virtual ward research is looking at what measurements etc can be collected/sent/analyzed etc to see how someone is doing and whether help is needed - I assume its intended...

When my wife was ill she was desperate to be home and home monitoring would have been great (in reality they released her home and had hospital transport pick her up every few days for the clinic and district nurses and other support when necessary). Which was better than the hospital ward. I...

yes

I think one of the letters talked about bad reviewing, Once an area gets a reputation for being difficult people will get put off - why keep trying,

Not sure a lot is still happening with the delivery plan and political pressure could lead to something. I think there is an issue in that the DHSC is more willing but the MRC is under a different ministry (Science and Tech) and hence different minister so I assume doesn't feel pressure. It was...

It had been mentioned to me as pulling in new researchers into the field

The thing I would see is researchers feel entitled that the government would fund their research (they obviously think it is important). The government should have some notion of strategy - what are the major research problems going forward, do we have sufficient skills/resources in these future...

There was a massive amount of work that happened prior to that to get the MRC on board and to work with Chris on a proposal.