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Until recently there was not single person I know who would accept ME. I decided it was all too hard and cut ties with the only friend I had who talks about mind/body stuff all the time and was impressed when she did the Lightning process years ago before I had ever heard of it. When I was...

Several days ago I was walking aimlessly around the house feeling unwell, aching muscles everywhere, and knowing I would achieve nothing that day. I don't know if it was PEM because I just ride the waves trying not to take notice of details and it all feels as though it's on the same...

Same here re eye muscles. I was told it was due to my age but it affects my vision far more than what would be expected with normal aging I think. Normal aging doesn't include crazy, erratic double vision or taking forever to focus on a TV after looking at a phone among other aberrations.

There are 177 (!) references and many of them are to do with the effects of Chinese medicine on rats.

I can certainly relate to switching off like this. Performing solo in an exam or a concert requires trusting that you've done enough preparation so you can stop being analytical. I've done this more times than I can remember and I have never been able to recall a single detail afterwards...

I've been thinking about exactly that today and also wondering how there's time to process everything in split seconds. It feels automatic when you're doing it and I suppose years of repetition have created cognitive shorthand, and there's muscle memory too. It could also be much quicker and...

I think it's because a great deal of mental work has to go on in the physical attempt to reflect the emotions being imagined or anticipated, and to fit in with a group as well. A performer can determine how they want to express their feelings - the exact opposite of a listener who can only...

I can relate well to most of that @bobbler. Lately I've been able to get through kitchen tasks more easily by having just audible, relaxing piano music playing. I can barely hear it but it actually calms me a lot then after about 15 minutes I suddenly realize I can't take any more of it. It has...

@bobbler: Yes, it is all very complicated. It's really hard to work out connections and all too easy to make them when they don't exist. I've been writing a daily journal for the last 25 years. Before I start writing about the more interesting stuff, I force myself to list my various ailments...

I don't experience anything as drastic during the day but I regularly can't sit still so I keep doing things until I can't keep going which is usually around mid afternoon. My 'adrenaline' or whatever episodes happen in the middle of the night. I regularly wake up 90 minutes to 3 hours after...

I've had ME for decades and I still can't tell what causes PEM most of the time. I do know that three days in a row of strenuous activity (for me) may lead to a single day or a few weeks of PEM. At other times it can happen out of the blue without any apparent cause. A sure sign I have PEM is...

This looks interesting and worth the very long read. I hope it leads to more qualitative research and understanding. My interest in this topic was piqued by Jon Ronson's very readable The Psychopath Test. From Wikipedia: The Psychopath Test: A Journey Through the Madness Industry is a 2011...

I think the Alexander technique is very useful for becoming aware of yourself physically which people normally aren't. I was ready to abandon my career as a violinist until I was lucky enough to find a teacher who used aspects of it. I suppose if your aches and pains were due to postural...

Thank you :)

I wonder what proportion of customers ask for it. That would be really interesting to know. Haha. That sounds more interesting than the usual " how's your day been" stuff.

ffs indeed! A long time ago I started cutting my own hair because I couldn't find a hairdresser who would shut up and let me be. There's no privacy in a hair salon. Relaxing music would be a better option IMHO.

I haven't noticed any reports of stem cell research for ME. I barely know what it is except for its use after chemotherapy in lymphoma and leukaemia. What would be the rationale for it in ME? I wrote my usual letter about using 'chronic fatigue' in the headline. Edit: The headline has now...

FCS (Fairly Confusing Stuff)

PEM pronounced as an acronym (rather than the initialised P-E-M) sounds silly to my ear. When I first heard it I thought it must be a joke about how ME is trivialised.

It's very debatable whether single use masks do need to be disposed of after a single use. There's plenty of advice (which I haven't got the energy to find now) that drying a respirator that hasn't been used for very long, and leaving it untouched for a number of days, makes it safe to use...