Search results

  1. 5vforest

    USA: InCellDx Dr Patterson - New lab service offering cytokine tests to Covid longhaulers

    I am very interested in speaking with any of these 500 “post Lyme” patients that he has treated, but try as I might, I have not been able to find any of them online… If anyone knows anyone, please put me in touch I guess. I did the cytokine testing and my results were not that striking. I have...
  2. 5vforest

    Preprint:CFS/ME, FM: “Therapeutic Test” and .. treatment .. clots and hypoperfusion, 2021, Chang, Figueredo

    Another preprint by the same authors, discussed here on s4me: https://www.s4me.info/threads/me-cfs-fm-mitochondrial-dysfunction-cellular-hypoxia-hypoperfusion-endothelial-dysfunction-persistent-clots-2021-chang-figueredo.23216/#post-389788
  3. 5vforest

    Hyperbaric oxygen therapy for the treatment of long COVID: early evaluation of a highly promising intervention, 2021, Robbins et al

    If they were serious about this they could also add a control arm that receives 100% oxygen without the pressure changing inside the chamber. Or they could have a group that only gets HBOT with 1.3 atmospheres. I've come to realize that these studies are probably not designed to be serious...
  4. 5vforest

    NEW POLL! Are these good ‘ME’ images for the media? (See explanatory post)

    I want to add, I agree that these are not perfect in any sense, but I think that they are probably a good 5-10x improvement on the images that currently most often accompany articles.
  5. 5vforest

    NEW POLL! Are these good ‘ME’ images for the media? (See explanatory post)

    Very nice, thank you everyone for your effort on this.
  6. 5vforest

    Observational study on the benefit of a nutritional supplement .. on chronic fatigue associated with SARS-CoV-2.., 2021, Rossato et al

    Unblinded study conducted by the supplement manufacturer, not sure what else needs to be said. Ingredients list for reference: Source: https://www.pharmanutra.it/en/brand/pharmanutra/italiano-apportal/
  7. 5vforest

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    She keeps writing "chronic fatigue" and "a chronic fatigue syndrome". Looks like just another person who has gotten hung up on the nomenclature and now cannot see the forest for the trees. Thankfully, I doubt she wields any actual influence.
  8. 5vforest

    Intimate Partner Violence and the Risk of Developing Fibromyalgia and Chronic Fatigue Syndrome, 2019, Chandan et al.

    Words cannot convey my disgust. Case closed IMO. I just found this in the text of the authors' other paper (linked by chrisb above): Anyone familiar with the subject matter will know that 0.4% is a complete joke -- the actual rates are at least 10x higher, or probably more. So it makes...
  9. 5vforest

    Sexual Desire, Depressive Symptoms and Medication Use Among Women With Fibromyalgia in Flanders, 2021, Van Overmeire et al

    Is this a gendered thing? It really seems like it. I can't recall one time a doctor has asked me (male) about my sex life. (in relation to my illness)
  10. 5vforest

    Covid-19 vaccines and vaccinations

    This is it. I don't think anyone really knows. There are too many changing factors like new variants, vaccine updates, etc. The other problem is that it's become very hard to even discuss the science without being accused of being "anti-vax". Apparently there is a risk to researchers who...
  11. 5vforest

    USA: InCellDx Dr Patterson - New lab service offering cytokine tests to Covid longhaulers

    Yes, kind of a strange pick. Given the correct framing I don’t think there is anything wrong with letting the guy speak, the problem is that he seems to be convinced that he is on the right track, even so far as to pick Twitter fights with other researchers who he disagrees with.
  12. 5vforest

    The Intricate Web of Fatigue in Women, 2021,Mathis

    Somehow, before I clicked this, I already knew the author was male.
  13. 5vforest

    Virtual Reality-Based Therapy Reduces the Disabling Impact of Fibromyalgia Syndrome in Women..., 2021, Cortés-Pérez et al

    So when they get sick of us taking up space in their medical offices, they'll banish us to the metaverse?
  14. 5vforest

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I think I have gotten desensitized to it by now, but when you stop to think... it's really so unbelievably depressing to see history repeating itself in front of your eyes.
  15. 5vforest

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I don’t understand what “RTHM” is, but it looks like they are offering the same low evidence treatments that are used at the specialist ME/CFS clinics. yes, I’m bitter. I’ve done dozens of these treatments and they were largely ineffective. It is good if more patients can access this care, in...
  16. 5vforest

    Navigating the social identity of long covid, 2021, Van de Vyver et al

    I had a much longer reply written up about this, but then I thought about the authors' backgrounds (social psychology and public health) and decided that they probably just can't help themselves. My reaction would be a lot different if it was written by an MD.
  17. 5vforest

    Aphaeresis/ Apheresis (for removal of microclots)

    I wonder how many Twitter spats will happen between now and when either team publishes a treatment study?
Back
Top Bottom