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Unfortunately the DWP caught up with my son's review earlier this year (after my posting above in January). It's been a complete nightmare. Goodness knows what he would have done without my help (he lives miles from me), but it's reduced me to a nervous wreck and we still await the outcome of...

I find that quinoa flakes and teff flakes (both available online) are really useful for a fairly instant meal as they don't need cooking. If you have a kettle of hot water handy they can be stirred into a bowl with just hot water or a bit of cold milk added. So... like an instant porridge and...

I have just had my 2nd vac done (AstraZeneca). For the first one, I had the expected fluey feeling for a day, and then nothing for 2 or 3 days and then 2 weeks worth of fatigue and brain fog. I did a yellow card report for MHRA on it. This time round I was in the midst of an attack of a...

I am not sure that they do or have done CBT in Cornwall CFS/ME service. I went to see the psychologist there about 5 years back - it was quite intense...certainly not what I was expecting. Quite a bit of raking around initially into my childhood, and even some interest back as far as my...

I am reluctant to put my recent downturn in symptoms to the vaccine. It's hard to believe, as I had a mild case of Covid in Dec followed by only a day of feeling unwell with the vaccine just over 2 weeks ago. I could understand it if I had been really unwell with both in the shorter term. My...

I bought a pulse oximeter last March/April time as advice on it was given to my sister in law's son who is a Dr. and she was recovering from a lung infection. With Covid-19 just getting going, I felt it was a worthwhile investment. However every time I tested myself the darn thing kept beeping...

I have spent weeks researching the vaccine as best I can online, and agonising over whether to have it or not - rather at least, whether to have it at this time or whether to wait a bit for more research results to come out when larger bodies of people have received it. I had all the standard...

I have had the whole gamut of digestive issues from the beginning, with a Dr diagnosing my brother and I with 'acidosis' in the 1950s - not sure that it was that, but we were both sick a lot. When I reached my late teens, IBS kicked in properly with a lot of diarrhoea issues for which the...

Yes, as Joanne above says, this is true as my son received his renewal forms for PIP and then shortly after received an extension of his award. I had it explained to me (I give him a lot of support with his benefits applications), that it is done because if the renewal forms are delayed then...

Luckily for me, I have had the prebooked mid-week offer at Tesco for some years, so i have had priority booking at a reasonable price. The only issue I now have is that since my husband died earlier this year, I don't buy enough for £40 free delivery any more on a weekly basis, and yet being mid...

I have ticked the first one but as JemPD said above, it's not quite accurate for me. It depends on what 'significant and lasted some time' means. I used to feel a lot better when I had eaten breakfast in particular. and could feel that it had given me energy that I needed. I do feel on the...

I am in the UK, retired and so no longer on disability benefits and luckily my pension and late husband's are very good but while I was on them it was a nightmare - reassessed 4 times in 5 years, and that was just the basic Employment Support Allowance - didn't bother to apply for the other one...

I stumbled on it on the Guardian website when I should have been asleep in bed last night, and instantly signed up I was so excited!!

Oh dear. I had one of these only the other day. Still, I am still here and in one piece so maybe mine was Ok. I maybe even have one in the freezer still - mind you mine didn't come from Sainsbury I just realised.

On the bright side @TiredSam it doesn't ACTUALLY mention people with ME or Chronic Fatigue Syndrome! I think the problem is that even if they have discovered something regarding a link with neurocognitive function in childhood, that must surely be just a group of people with this issue, not...

I wondered what people on here made of this latest bit of research reported today on the BBC. https://www.bbc.co.uk/news/health-50015982 I can't see that anyone else has posted this, but I may be wrong? Apologies if this is posted on another thread somewhere. Here is another link as I now see...

I had IBS symptoms all my life that tipped over into gastritis in my late 40s - caused I believe in part by diet plus hypothyroidism that was not well treated by the standard Thyroxine care. I recovered from the gastritis but ended up with chronic digestive issues caused I believe in part by...

I am 67 now but in my late 30s and 40s I went through a form of this. I used to feel absolutely dreadful in the week before my period. Terrible brain fog and severe fatigue and like a wound up spring. When I was 43 I remember going to the GP and trying to explain that my PMT symptoms that had...

I use a non-standard thyroid medication which is Liothyronine/T3 (due to underactive thyroid diagnosed pre-CFS), and which up until now I have been incredibly lucky to get on the NHS and have been T3 only for 7 years. The CCGs in some areas have made T3 completely unobtainable, so I can only see...

I am now 67 and have had a lifetime of gut issues! First IBS at around 19, primarily diarrhoea based. I was given Codeine Phosphate for it for some years. Years of bloating and discomfort, and then developed gastritis (diagnosed by endoscopy). I got a rectocele too which didn't exactly help...