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One of my sons comes into the above category (in the UK). I noticed a couple of years ago that things had improved at his Community Mental Health team as they were beginning to take note of his physical health needs, encouraging him to go to his GP for blood tests, talking to him about his...

My son gets both in that he qualified for contribution related ESA but his income and savings are so low that he ALSO has an underlying qualification for income related ESA. In his case because he gets PIP too, this means that he gets extra payments known as 'premiums' which are only given for...

Interesting to hear your own journey @DokaGirl which is a lot longer than mine. I must say that when my own health declined, that I did not tie it in with the thyroid condition at all, as I had improved so much once I went onto Thyroxine, but this was only a few years later and was during the...

Thank you @DokaGirl for your post.I have heard of Broda Barnes but never really looked further into the organisation, so I will take a look at their webiste. Unfortunately my energy has not been great this year since I had the last eye operation - seemed to take me further downhill, but at least...

I got diagnosed with osteoporosis nearly 2 years ago and was really worried about it. Admittedly I am 66 and well past menopause, but for someone with ME have been reasonably active. I had taken Vit D for at least 7 years before plus magnesium most of the time. I had also had a couple of blood...

Now I am 66 I could have the flu vaccine but so far have dithered over it and not had it done. I don't remember ever having the flu to be honest, though I think I might have had it as a young child. I have had whooping cough as an adult 9 years ago which gave me a bad ME relapse and I know that...

'In 2011, a large, systematic meta-analysis of early interventions for autism found no evidence supporting a psychoanalytic approach for the condition. Yet if French parents oppose it, they can face dire consequences, including the forced removal of their children to institutions or foster...

Unfortunately, I too bought the Gupta programme some 10 years or so ago, at the beginning of my ME and when I was feeling pretty unwell. I remember putting the silly bit of paper on my bedroom floor and being annoyed as I have a tiny bedroom and it didn't even fit on my floor properly, and then...

@MeSci Sometimes improvements are so tiny we don't notice them at first until they accumulate in strength. I hope this will be true for you. Yes, my nasal stuff is better, but I can see that I am still not better in myself as now I have a flare of Lichen Planus in my mouth - always a bad sign...

I remember this happening @MeSci I do get small aspects of this when I am in mental overload. Today I do a couple of hours at Oxfam locally and put books online. After that I was exhausted, and found myself puzzling over the bank machine on how to get money out.....managed it in the end, but...

Yes, I buy most stuff online now too @MeSci as it's too much effort and energy to walk around to look at things. Glad to hear that you can get a taxi for your Dr but I guess it must be expensive to get there and back now. Mine is also moving soon, a bit further away but at least still in...

Thank you for your kind words @Louie41 I did feel a tad better this afternoon as I was able to sit in our garden room in the sunshine which was lovely. My nasal issues have been up and down today but better than yesterday.

Oh that's interesting @Liv aka Mrs Sowester - someone else with just the pain then, and bleeding too which I don't get luckily. That must be very unpleasant. Yes, I guess mast cell disorder is another possibility for me, as I looked into that for gut issues at one time, and I get the symptoms in...

Thank you @Liv aka Mrs Sowester Do you have mucus with it or just pain as I do? I wonder if mine is a kind of autoimmune reaction. I do see that the Sterimar is good for allergies so it could be helpful.

Thank you for taking the time to write @MeSci even though I know you are in a worse position than I am. It is very difficult to be so isolated and with few friends. Can you get out at all - do you have to use taxis? I seem to remember that you do not have a car (as we do not either). I hope...

I know a lot of people with ME seem to have sinusitis issues. However I get a symptom with my sinuses and that general area which I have had repeatedly for some years. It feels to be part of a new virus each time - general soreness in the nasal area, which then can become painful. I usually...

Yes, very true. There is much more research that needs to be done on osteoporosis which I hope will improve things. I did discuss the issue of the 'death by broken hip' scenario that the rheumatologist raised as a reason to use bisphosphonates. However when I challenged him on it, he backed off...

Indeed. I pressed 'like' but obviously I 'don't like' what happened.

@Invisible Woman yes I certainly agree that we are all individuals regarding what we ingest. The problem is with these medications re the more serious side effects, that it's an unknown when you start them. There are many people who have more immediate side effects re oral alendronic acid re gut...

@Invisible Woman I am very dubious about the 'treatment' of osteoporosis as I have explained in my reply to MErmaid. I doubt that mine can be reversed now, but I think I am doing my best to maintain bone quality by keeping off the 'treatment' and by using good quality food and supplements. So...