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  1. Arnie Pye

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    This begs the (deliberately absurd) comment... If females are traumatised in childhood and become "mentally" ill as a result e.g. developing chronic Lyme, ME, Long Covid, Gynaecological problems, EDS, IBS, "functional" epilepsy/dystonia/leg weakness, does that make them immune to physical...
  2. Arnie Pye

    Trisha Greenhalgh on ME/CFS and Long Covid

    Anything claimed without evidence will be much quicker and easier to produce than something which requires people to take drugs (for example). Having to monitor and test people physically in person (because they are taking repurposed drugs or experimental drugs and need blood tests or scans)...
  3. Arnie Pye

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    I worry about lots of sick people getting an FND-type diagnosis because I am under the impression that all it gets treated with, if anything, is psychiatric drugs, exercise, and CBT. But what happens if someone gets heart failure or appendicitis or COPD or some other condition which has helpful...
  4. Arnie Pye

    Why functional neurological disorder is not feigning or malingering 2023 Edwards, Yogarajah and Stone

    My biggest issues with any diagnosis of FND are : 1) If I am diagnosed with FND as a result of a pain in my abdomen (for example), then if I later develop a pain in one of my legs or my right lung or my pancreas they will automatically be assumed to be part of my "FND" diagnosis with much less...
  5. Arnie Pye

    A Secret for Falling Asleep So Good It’s a British National Treasure

    The theme tune for the Shipping Forecast (Sailing By) by full orchestra - I have always loved it :
  6. Arnie Pye

    Urine Metabolomics Exposes Anomalous Recovery after Maximal Exertion in Female ME/CFS Patients 2023, Glass, Hanson et al

    Would a potential biomarker have to "work" for males as well as females before it would be considered as a reliable biomarker? Does science/medicine allow for biomarkers for disease that only apply to one gender?
  7. Arnie Pye

    Non-Cardiac Chest Pain as a Persistent Physical Symptom: Psychological Distress and Workability 2023 Ólafsdóttir Flóvenz et al

    I had Non-Cardiac Chest Pain for a few years. It got fixed (by me, by accident). I didn't know that low iron caused chest pain at the time. I just knew I was terribly unwell and very, very weak. I massively improved my below range iron levels and my deficient ferritin. I haven't had chest pain...
  8. Arnie Pye

    Functional neurological disorder in children and young people: Incidence, clinical features, and prognosis 2023 Yong, Stone et al

    So the authors are setting up (mainly) girls to not be treated for any health problems in future? And they are doing it really early in life to save money in future? This kind of paper makes me feel sick. (Must be FND - sarcasm....)
  9. Arnie Pye

    Earache / strange smell / tinnitus

    Have you had Covid? Ever since I had it I've had repeated bouts of weird smell and taste that have been different to anything I ever had before Covid. It's often a metallic smell or taste.
  10. Arnie Pye

    UK: Dr Sarah Myhill

    How many patients think about the law before consulting naturopathic doctors (or whatever they call themselves)? I understand your point of view, and to some extent I would agree. But from the point of view of any new ME patient who doesn't know anything about ME or how doctors treat it I can...
  11. Arnie Pye

    Long-term high-dose immunoglobulin successfully treats LC patients with pulmonary, neurologic, and cardiologic symptoms, 2023, John S Thompson et al

    I agree with you. But for people who don't have ME and have never had a chronic illness three months might be a long time. After all, the worst thing that has happened to a lot of people before Covid was getting a cold which they recovered from in a week or two.
  12. Arnie Pye

    UK: Dr Sarah Myhill

    Is there any evidence that Dr Myhill has killed or injured (by omission, missing diagnoses, or incorrect prescribing) any of the people that she has treated or advised? If there is none then I don't understand why people are so angry with her.
  13. Arnie Pye

    Radical rest: evidence and anecdotes

    I have a vague memory of my mother telling me that convalescent hospitals were used for people who caught scarlet fever in the 1930s. Since I am not familiar with the disease I don't know why this was considered necessary. I only know one person who has had scarlet fever and that was before I...
  14. Arnie Pye

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    I've never heard of Mg infusions and they sound dangerous - it suggests to me that the patient is getting a massive dose, but I could be wrong. I take small doses of magnesium citrate powder roughly every other day to help with constipation and to reduce cramp, muscle twitching, and muscle spasm.
  15. Arnie Pye

    Antihistamines

    There are multiple different types of antihistamine. I think the oldest ones, such as diphenhydramine, are believed to increase the risk of dementia, but I have no idea about the others. It might be worth researching the different kinds and looking up the intended effects and the side effects of...
  16. Arnie Pye

    Prebiotic intake reduces the waking cortisol response and alters emotional bias in healthy volunteers, 2015, Schmidt et al

    I'm rather puzzled as to why reducing cortisol seemed to be considered desirable in healthy people? Many of the subjects may have had perfectly good levels before the start of the experiment.
  17. Arnie Pye

    Medical conditions that are well recognized but that (currently) lack a diagnostic biomarker?

    Ovarian cancer - there is a test but it is not a reliable one and women can end up being dismissed and ignored for ages. Lung cancer - you can cough yourself sick (literally), lose several stone, be given an X-Ray, and still be told your lungs are absolutely fine, until an MRI is done...
  18. Arnie Pye

    Oral cancer/general anesthesia

    It seems to me that you are being railroaded, and the operation is not being discussed properly. I realise that the quicker the treatment is done the better, but have you been told how much is being removed? What the after effects will be? Will it affect your speech? Will it affect eating and...
  19. Arnie Pye

    Adverse maternal, fetal, and newborn outcomes among pregnant women with SARS-CoV-2 infection: an individual participant data meta-analysis 2023 Smith

    I'm sure I read that babies born to women who had Covid while they were pregnant had smaller than normal lungs at birth. I have no idea whether the babies' lungs would grow to become normal sized after birth. I don't remember the source for this, sorry.
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