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The BPS studies do align, they all fail to have a long term positive effect with no objective signs of improvement. The problem is that they want to carry on doing studies to make it seem as if they are useful treatments to keep the money rolling in.

That is because they use the tactics of bullies or the abusive husband by painting themselves victims and accusing others of what they are doing. The thing that shows they are wrong and that Flegel and us are right is that science debates the issues and differences. There are big differences of...

On a forum years ago we had a mother with 2 children and herself sick living on benefits. She phoned Action for ME and spoke to MJW who recommended she get her kids into LP. I was horrified that an ME organisation would allow this to happen. She was frantically trying to find ways she could...

Migraines are often one sided. I was surprised when the doctor explained that to my husband.

Like they say, it is the cover up that causes the biggest problems. Everyone has now done something wrong so they can't admit they broke all the rules to let these dreadful ME papers be published.

So the aim of psychosomatic medicine is to make the patient believe they are mentally ill! Having a mental illness has a stigma, but they are recognized as illnesses nowadays and things are changing for the better. The problem with psychosomatic labels is that it taps into our deep aversion to...

"Power, Sex, Suicide: Mitochondria and the Meaning of Life" by Dr Nick Lane is one of best science books I have read. The reviews call it enthralling and astounding. The accidental union of an archaean cell with a bacterial cell has allowed organisms to have enough power to grow into...

Freedom is having the physical ability to put on a mask by yourself. Sadly, many of the people demanding freedom will get longcovid and some may well spend the next decades with the restrictions of ill health.

But lucrative

There are now very few over fifties who aren't vaccinated (less than 1%in Scotland) so if anyone over fifty dies the chances are that they were vaccinated. So it is statistical rather than to do with the vaccine. It has always been known that the vaccine is not 100% effective. (This figure is...

One of the problems in biology that is glossed over is levels of organisation. We have a lot of knowledge of each level but how you go from one to the other is as difficult as how a quantum world becomes the physical one we know. I just can't get my head round how it moves from the chemistry of...

I was very disappointed when they put unrefreshing sleep as a symptom of SEID giving it prominence equal to PEM. It is one of these things like fatigue where patients will accept the term as describing what they are feeling even though it is not exactly what they experience. Then doctors carry...

:banghead::banghead::banghead: Fukuda is best, so no acknowledgement that PEM is the cardinal symptom of ME and they asked about self esteem!!! What a waste of money.

Too many of these researchers think of CFS even if they now say ME. They have no idea of what our disease does to us. Thinking about it, people with unexplained fatigue must outnumber those who specifically have ME especially as people with ME give up on the medical profession, so the ones they...

There may well be something wrong with these systems in ME but this is awfully close to ideas like central sensitisation and other BPS ideas. If the sympathetic nervous system is hyperactive then you are anxious so CBT and mindfulness will cure you. If they are going wrong in ME it is more...

The UK government have decided on a script and all the usual suspects are following it. Back to normal, nothing happening anymore, just an exaggeration.

I just realised there is a pattern to all this work. It began with paper after paper looking at how to make the idea of a functional disorder palatable to the patient with some even trying to work out why patients were "resistant". The fact the theory is wrong was not considered. Now it is all...

It makes sense when you realise they are trying to sell a product. UK faced crisis, crisis solved. Everything is back to normal, vaccination, which government did really well, pat on the back, has worked, covid is no more deadly than flu or pneumonia, ignoring the demographics of that, and you...

There is a thread about that here https://www.s4me.info/threads/covid-19-vaccination-experiences.19645/ Basically some, maybe the majority, are fine after a few days while some are not. It is the same with the flu jab. Nothing about ME is easy. The only thing you can try to do is weigh up the...

I plan on wearing a mask because it will stop me touching my mouth with my glasses keeping my eyes safe. It seems it gives a little bit of protection for the wearer too. What is worrying for us is that the people making the choice to not wear a mask are not the ones at risk it is everybody in...