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ME papers are unlike others. The "research" that shows how good GET is needs very careful examination for things that are not usually encountered in a peer reviewed paper. The references do not always match the assertions in the paper. I stopped checking but now assume they are all dodgy if not...

One of the things we have had problems with is that the oversight bodies for research all seem to have very narrow remits. I am too ill to go into details, this is just the overall outcomes but they have all been used by the BPS to claim that their research is valid and criticisms baseless. (An...

Do they actually listen to themselves? That sentence makes no sense. Infections represent risk factors for damage to the body. You get polio, it damages the body, you need calipers to walk or an iron lung to breath; there is not a point where the body heals and you start imagining you are unable...

If infection can cause a lasting hyperglycaemia and insulin resistance then maybe the global incidence of diabetes is not just down to obesity and lifestyle choices.

Not long into the first lockdown the New Scientist had an article about the preparations needed for the next epidemic. For a host of reasons, from jungle meat to intensive farming, to population density and worldwide fast travel, we are meeting novel viruses at a rate never before seen. A lab...

Merged thread - re children being severely affected It is worrying that there have been 10 children hospitalised in Scotland with covid in the last week. They do not know if some of the new variants are causing more severe disease in children.

I automatically judge the institutions that support BPS work. Their reputations are damaged beyond repair to me.

Why do we need an exercise plan? This shows the embedded implicit idea that we are ill because we don't exercise instead of the basic fact we cannot exercise because we are ill. Ramsay said that getting better by exercising is a way of distinguishing those who do not have ME since ME is defined...

I don't have enough knowledge to have a view on immune issues, I defer to those who understand better. However it is not safe to assume previous studies have ruled anything out in ME. The fukuda definition is not only nonspecific for ME it was very open to interpretation depending on how much...

What about the drug for arthritis that was banned because less than a hundred people worldwide were badly affected? I cannot believe that GET is not banned on the basis of the number of people who claim they were harmed. It would be a simple matter to check that people were house or bed bound

The US patient group decided to do a survey a while back where they asked people what their weight was. It was meaningless as they did not ask what people's weight was when they got ill which is the only thing that is relevant.

How could the ones who achieved 10000 steps a day be classes as sedentary? More and more, I do not think that sedentary people are good controls for us. I do not think I can be alone in this. Most of the people I know that I would class as sedentary are slow in their movements and do not like...

Moderate cases often can't work either. I tried working a couple of times but I could only manage a few days before I was in bed for a few days and I doubt I was unusual. There was no rhythm to it either so working Monday to Wednesday then resting would not have worked. I managed university...

It would also be dodgy if there was a committee set up to examine racism and none of the members were black. As other people have said any experts who do not believe that CFS is behavioural are called activists (not to mention terrorists and antiscience!) Years ago a committee was set up to...

Could someone with a BPS background please give me a scientific explanation of the biological pathways by which being female causes pain.

Another massive disappointment. Where are the people who have been fighting for a proper review? I am not convinced that there is anyone on this panel who understands the issues and the science. I am a great admirer of Lily Chu, but find the experts from the US do not understand the depths of...

I couldn't find a throwing up icon. I once had to argue with a friend who felt Ben Goldacre was doing great work and now we have Horton. What have we done to them that these great defenders of patient's rights throw us under the bus?

An objective look at someone with ME would see that they are very sick so something is going wrong in their body - they have a disease even if the cause is not known. There is nothing weird about ME. All the confusion has been caused by meddling by the BPS and their ideas. Many diseases have...

It always amazes me that they feel "Functional Somatic Symptoms (FSS) are physical symptoms that cannot be attributed to underlying pathology." yet are quite happy to assume emotional pathology with a similar lack of evidence.

I was getting bad muscle cramps at one time. Coincidently, a relative was taking up jogging at the time and spoke about having to warm muscles up before exercising. I thought that because I did not move very much when I did move it was like a normal person going straight from walking to running...