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  1. M

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Perfect, Oh bravo for spotting this on X @Amw66 ! :thumbup: This is exactly what I've been waiting for; I knew it would come eventually. Thank you so much to Claire Jones for safeguarding vulnerable disabled patients. :hug: I've been following the lead suggested by Valorie Eliot Smith's on...
  2. M

    The double invisibility of Long Covid in children, 2024, Wild et al.

    Myself and many others @MEMarge - I was in the adult service she oversaw at Bath. I didn't warm to her on my one and only meeting with her, couldn't put my finger on why at the time. Dropped like a stone 48hrs after their 6 week course of APT and their mindfulness version of CBT, the year...
  3. M

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Question: Does anyone know if NICE issued a statement concerning the possibility of harm resulting from treatment of ME between this specific date parameter? 24.1.2019 - 2.10.2019 The end date being the date Cochrane published the amended version of the Review. Publication of Cochrane...
  4. M

    “Inverse Vaccine” Could Treat Multiple Sclerosis and Range of Other Autoimmune Diseases

    That's very interesting. Thinking about the possible hereditary implications found in ME: my father had ankylosing spondylitis, and I've had psoriasis for the last 50 years, 32 years before developing ME. Whereas my mother didn't develop psoriasis until she was 55, shortly before her death.
  5. M

    The double invisibility of Long Covid in children, 2024, Wild et al.

    It's certainly her style, she talks to adults like that as well, I know I've been on the receiving end of it.
  6. M

    The double invisibility of Long Covid in children, 2024, Wild et al.

    This is yet more evidence of systemic abuse and neglect. Knowing the source of the initial infection clearly makes no difference! "Some participants attributed this dismissal to health professionals’ inability to explain, manage or treat their debilitating symptoms, and so relegating them to...
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