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and the obvious conclusion to that being that when we die, we really did bring it upon ourselves through behaviour and chronic deconditioning, as the current 2024 (re-dated 2019 review) implies, because the therapy causes no harms at all, and that's why there'd be no need for a reporting...

Snap! My copy ended up in a charity shop.

The UN Special Rapporteur of the Committee for the rights of persons with disabilities calls such things as trauma inducing instead of trauma informed.

You've just described in your last paragraph exactly my 6 week experience of CBT and Activity management in a clinic, diagnosed under the 2007 NICE guideline and PACE trial results in 2011. My form filling was worse on fatigue but I felt better on everything else. I had been given tools to help...

From the OCPD Foundation Co-morbidities include eating disorders, as well as anxiety and depression. Comorbidities — The International OCPD Foundation Treatments include CBT, ACT and Exposure Therapy. Treatments — The International OCPD Foundation All of which seem to be the treatment...

OK thanks Kitty. I just don't want this to get lost on Youtube ss it's importance evidence.

Can someone please download this off youtube, I can't.

Doesn't a chronology really show up how bad this has really been. Well done. One could also argue that Cochrane's actions in December 2024 IS a response and that, in and of itself, is reason to escalate. Therefore, giving them a further 3 weeks is a very reasonable attempt at reaching a...

Here's another news article last week for balance. Doctors refused to remove young woman's ovarian tumours 'until symptoms got worse' Daily mirror 22 Jan 2025, a 22 year old woman

Oh dear, Mr and Mrs seem somewhat exercised this weekend. Fourth day of the House of Lords debate at report stage of the Mental Health Bill early next week. (excerpt from the King's Speech at the opening of Parliament 17 July 2024) Did the 'heartsink' patient gp training module (I had to...

I can confirm that from personal experience. In fact they ignore all your symptoms including medicine intolerances.

Do take care Trish. I'm already crashing from the limited amount of cognitive stuff I've done today, and your letters are detailed and in depth.

Am I correct in thinking that the 2019 now 2024 review without the suggested editors note from the IAG only includes research on mild/moderate cases of CFS/ME? If so, then this republished review as it stands will be used to support activity management based on a deconditioning/behavioural...

YES! ETA: Carol Monaghan SNP read out in the Westminster Hall debate in 2018, an extract of a letter she received from someone who participated in the PACE trial.

From the Editor's note published 2 October 2019 In Hilda's latest blog she mentions over 100 criticisms received.

and I'm sure I read somewhere that they adhered to COPE Publication ethics: An introduction to COPE Retracting an article when an institutional review concludes no misconduct | COPE: Committee on Publication Ethics

But, am I correct in understanding they can withdraw entire reviews, or exclude certain pieces of research from a review, on various grounds which relate to patient safety and they are required to write a protocol, and protocols are very specifically detailed in the DoH?

Basic question from a non science background. Does Cochrane have an ethics committee, and are the systematic reviews considered 'research' on human subjects for the purposes of the Declaration of Helsinki (both the 2013 and 13 December 2024 versions?) I'm guessing it does because a protocol...

Yes, and he together with the all the international signatories to the 'anomalies' opinion piece in July 2023 form a thread.

I see Kate Kelland in Reuters wrote this. Wasn't it her who did that interview with Sharpe in 2019 quoting David Tuller? This from the link There's your smoking gun. Merry Croft died 23 May 2017. Context and timing is crucial. And they've done it again now, especially during the ME/CFS...