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  1. M

    David Tuller’s talks “Bad Science, Bad Medicine: How Flawed Biopsychosocial Studies on ME, Long Covid and Related Illnesses Harm Patients.”

    Looking through some documents I printed when I was first diagnosed I came across this paragraph under the heading on page 21, 'Good practice points' in the Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline 2006: Good Practice Points Never come across...
  2. M

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    This is impressive work and invaluable evidence.
  3. M

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Thanks for posting this. I didn't have a link to the parliament tv clip of the Debbie Abraham's question on Jodey Whiting suicide (2017) or Errol Graham starvation (2018). Parliamentlive.tv - House of Commons
  4. M

    UK Government ME/CFS Delivery Plan consultation

    Section 5.10 Agreed Actions of the Interim Delivery Plan under sub-heading attitudes and education stated this: From the results of the consultation on Attitudes and Education section, sub-heading Education and training: This is an example which was posted on another thread which is/has...
  5. M

    United Kingdom: Sussex & Kent ME/CFS Society News

    The DHSC Delivery Plan should be published BEFORE parts are IMPLEMENTED on the ground! WTF
  6. M

    Explaining persistent physical symptoms to patients in general practice: can tests to measure central sensitisation add value? 2024, den Boer et al

    Agreed. It's exactly that type of advice which could end up in a late diagnosis of cancer, endometriosis, all sorts. Just because we are diagnosed with CFS doesn't mean we don't have other illnesses.
  7. M

    Explaining persistent physical symptoms to patients in general practice: can tests to measure central sensitisation add value? 2024, den Boer et al

    Here's a metaphor right back at them from The Four Principles of Biomedical Ethics — Healthcare Ethics and Law
  8. M

    Explaining persistent physical symptoms to patients in general practice: can tests to measure central sensitisation add value? 2024, den Boer et al

    I had to double check on central sensitisation. Found this video. Just keep telling the patient it's their maladaptive beliefs are the sole cause of their problems!
  9. M

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    I've only just seen this thread and haven't read all the comments so apologies if this duplicates, but I was about to start going through some Cochrane reading material. My first question was also what the hell is a Living systematic review?? Reading the following from Cochrane, isn't this...
  10. M

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Thanks for this info @Chestnut tree That links Cochrane to the 2007 NICE Guideline. I'll read the practice guide over the next week or so.
  11. M

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Interesting. So like many professions such as human resources have the CIPD to keep them up to date, seeking professional current legal advice on a legal matter etc. The whole thing begins with the correct diagnosis and that depends on education and training and application, a root and branch...
  12. M

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Most nations have enshrined the principles of the 1948 Declaration of human rights, freedoms and responsibilities into their local laws. Is there a link to the Australian and New Zealand versions? ETA: Montgomery v. Lanarkshire Healthboard [2015] Supreme Court case is a common law case. It...
  13. M

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Can someone please clue me up on (with evidential links if possible) exactly who the target audience for a Cochrane Review is designed to be? Obviously researchers but who on the medical frontline treating patients would actually check up on them, or is it just policy makers and management...
  14. M

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Perfect, that date ties in with the beginning of the WHO Patient Safety work. Thank you @Peter Trewhitt
  15. M

    Myeloid-Specific JAK2 Contributes to Inflammation and Salt Sensitivity of Blood Pressure, 2024, Saleem et al.

    In 2018 I was diagnosed with secondary polycythaemia after a negative JAK2 test. From the limited amount I can understand from this, it's interesting on the hypertension. Although I'm very careful about salt intake and haven't been tested, I'm still having twice a day blood pressure tests as...
  16. M

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Question: Can anyone easily point me towards a link to the relevant review which was current in 2011?
  17. M

    Relaxing music for sleep

    I've been listening to Rap for decades. I have an extremely eclectic music taste. I think the rhythm and speed is soothing in this one, but high pitch in the background is too much for me. Thanks for the pointer, I'll have a listen out for some of their work.
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