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No he doesn't. I don't know where you got this impression from. He fully understands and implements pacing and

Why do you find this not "overly encouraging"? It is highlighting the mismatch between current measures and the difficulties pwME report. It contributes to the case that we need new measures that are co-produced with PwME.

Why would one assume BACME are providing PPI for pwME? That would be silly as they aren't pwME. Three of grant holders have ME and we will lead the PPI for pwME. We will convene a PwME advisory group who will provide PPI input.

Indeed, we were planning to do so and some of hte conversations a wee while ago about how to measure activity/function have already influenced my thinking. We will be convening 'patient' and clinicians advisory groups for just htis purpose and all are welcome to put their names forward.

I am sorry you find my work mortifying, I confess it is not a reaction I have ever come across before. could you explain why you are mortified? I see you do not know Dr Peter Gladwell. I can assure you that he fully 'gets' ME on both a personal and professional level. He is a physio with a PhD...

Indeed, that is why we are working with BACME (and PwME) to co-produce the toolkit to ensure it is fit for purpose and fits in with other aspects of clinical practice (which are big barriers to the use of measurement tools in practice) and will also produce training materials as part of the...

Hi, Yes I also have ME (thats why I retired early for te University of Manchester) and have been carer of sone with ME for many tears

She is describing her own experience, so it's maybe to be expected that the text doesn't cover the full range of the way it can affect people. Its so varied I'm not how that could be captured.