Search results

@Michiel Tack I suspect you're misunderstanding the goal of the study. I think it's meant to document what symptoms patients are experiencing and highlight symptoms that may be receiving little attention, as well as showing overlap between POTS, MCAS, ME/CFS, long covid. If there is a lot of...

The toxicity of the BPS psychiatric approach also generates distress and hostility in patients. Which is then cited as evidence that the patients need to be managed by psychiatrists. They cause psychiatric problems instead of solving them. Apparently their brand of psychiatry is primarily...

Maybe Sweden and Denmark can learn something from Norway? And I don't mean LP.;) The diagnosed cases are not the same thing as the cases that exist.

It's ironic that the BPS approach markets itself as being holistic and deep. In reality it's superficial and has a very narrow focus on the same few ideas that are applied to everything. An example is how the solution it proposes is nearly always CBT. In the case of ME the BPS approach even...

Potassium regulation during exercise and recovery https://pubmed.ncbi.nlm.nih.gov/1656509/ So the fatigue appears to hit fully when the potassium in blood returns to muscle cells.

One I think remarkable aspect of my fatigueability is that mental exertion can cause widespread weakness and fatigue in the rest of the body so that it visible affects my gait and walking speed. And similarly, after a walk I'm not very talkative because my brain is affected as well. Presumably...

A simple test might be to just count the studies reporting desirable effects and those reporting a lack of desirable effect. When researchers nearly always confirm their hypothesis or find their favorite treatment works then something isn't right because nobody is that good at solving difficult...

The recent posts and information here is intellectually stimulating. I realized that Vogt and I have vastly different experiences. When I first had symptoms, I did not think I had a chronic illness and carried on as much as I could. When they got worse and I began asking for help, I met...

It really is like gay conversion therapy. The goal is to make people stop believing that they have long covid or CFS or whatever. Presumably the driving force behind this is just the fragile ego of doctors who can't deal with the reality of having patients with an illness they don't understand...

It's funny how Vogt unironically goes on about the harm resulting from doctors carelessly spreading false ideas about illness, while spreading his own evidence-free ideas with large potential for harm. He apparently thinks it's ethical to label, without any proof, large groups of patients as...

A family member who is a doctor recently told me that he had a patient with pain everywhere and depression, on antidepressants. Her vitamin D level was 6 and this was the cause of her symptoms.

I suspect you'll find showering to be near the top of the most strenuous activities.

What they say: your symptoms are very real, ME/CFS is not all in the mind. What they do: design clinical trials to test whether changing the patient's thoughts and beliefs about symptoms will lead to a recovery from the illness. Then, when the results are poor, they switch outcomes to obtain...

When I was younger and already ill, I was treated for low iron levels. It had nothing to do with a low iron diet or not eating enough.

RNF123plays a role in Class I MHC mediated antigen processing (and other things).

Would it be possible to seek funding from other sources for the purpose of transparency in research or some important cause like this? There have to be funds for this available somewhere. If not, they should be.

It's £4 over the goal now. Congratulations!

Only £265 left to the goal.

It would be good to sequence the genome of families with multiple ME/CFS cases (especially if other unexplained chronic illness is also present). We could learn what genetic diseases are misdiagnosed as ME/CFS which will be very helpful for those patients where this is the case. It could be...

It's even worse than this. Their belief system also includes the belief that negative feedback from patients can be safely ignored. After all, the illness is the result of negative thinking, therefore any negative feedback from patients is just a demonstration of the negative thinking that led...