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This is when I first learned about him: 2:04:41 he starts going on about CCI. Sadly one of the most viewed videos and biggest outside reach.2:15:00 he promotes it more. His interview starts at 1:50:00… leaky gut, CCI, etc… everything just said together. Have a friend that went to his...

Wasn’t there a gene linked to mucosal or the respiratory tract in the DecodeMe data?

Kaufman was involved in the Rapamycin studies: 31:44 min he states it works for 50% of ppl in the study, which we now know is not true after the results were published. He has a history of hyping of every new treatment and giving it to his patients Willy Nilly. Not sure why he’s still a...

^ old posts where he discusses this same data where he admits the 35%. Watch that video it’s not confidence inspiring

Unconvinced. If this is the same data as previous videos where he’s stated only 35% of cases had the inflammation. He should not be taking money until he has a paper proving this. Again spreading the limited funding of ME/CFS for influencer scientist with the best YouTube channel, not strong...

“recent news reports and a published case series have described a dramatic benefit in both olfactory function and other long COVID symptoms in patients receiving stellate ganglion blocks.” It would be nice if they had measured “other symptoms”. I’d rather have quality of life improvements...

This is so weird who is thinking SGB improves Olfactory Dysfunction? Most groups I have seen have been getting this since it supposedly it helps calm the nervous system in turn is supposed to improve quality of life. I’d be much more interested in that outcome measurement

Usually my folks and extended family donate to OMF at end of year for triple November which helps with 501(c) incentives This year they are focusing on Norway

Have to say hate to see them selling a subscription service just to access the app to read the data…. $379 for the sensor $199 a year to actually use it https://lumiahealth.com/products/lumia-initiation-kit?variant=49810368332097 My second question is let’s say it actually works, what the...

Unsure of where to post this, but Hamilton robotics for lab automation has started a new grant for automating labs in the United States and Canada. I used to program these as a job, so if a ME/CFS lab won the grant I would be happy to donate my time to help automate workflows and experiments. I...

What’s funny is you look at their “SJOGO” app paper and it was barely used over the time period (5–7 and 10–13 weeks) so they just shortened it for the ME/CFS trial to avoid this result. “However, app engagement and outcome completion rates could be improved.” Then the recover saw this and was...

On the positive side the patients didn’t waste too much time and energy on such an ill conceived approach

Am I reading this right, they used that for less than a week and a half: “Participants interacted with the app over 7-10 days and were then recon-tacted to participate in a second one-to-one interview” What are we even doing here

Something that could be vibe coded in about a day…

Micro dosing GLP1 seems to be making a wave in local Canadian groups due to naturopathic doctors being able to prescribe. The joys of a underfunded system that unloads onto quackery Yet to see a positive experience

Bateman hornes “deep dive” feels misleading: https://batemanhornecenter.org/deep-dive-oxaloacetate-for-fatigue-reduction/ The deep dive was spurred by seemingly more misleading page: https://batemanhornecenter.org/understanding-the-potential-of-oxaloacetate-for-long-covid-and-me-cfs/

I actually hadn’t seen these threads. I will check them out. I found this one interesting for people following this: Post in thread 'Itaconate modulates immune responses via inhibition of peroxiredoxin 5, 2025, Tomas Paulenda et al'...

I think we have got to stop thinking about being a fan of certain people/theories/etc. it’s not a popularity contest or what fits our world views. If you’re recommending what research to follow I think it should have some evidence. Any reason other than his theoretical approach? I’m really...

Really? I got the opposite impression, that he hasn’t conducted very many experiments to validate his hypothesis. His recent symposium talk seemed rather loosely based on previous work, not a lot of validation and lots of speculation. Any chance you can point me to the work that has you...

A few OX40L monoclonals are coming to market soon: https://www.sanofi.com/en/media-room/press-releases/2025/2025-09-04-05-00-00-3144170 "normalize the overactive immune system, without depleting T cells" Originally for dermatitis, but I believe they think they will be good general immune...