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Who has been rattling his cage? "NICE guidance on ME/CFS is the most extraordinary corruption of the evidence-based guidelines process I have ever seen. See this article in the Lancet" https://twitter.com/PaulGarnerWoof/status/1579099446448885760

$13,074 raised, 22 days left. https://crowdfund.berkeley.edu/project/33528

Abstract The SARS-CoV-2 pandemic has added new urgency to the study of viral mechanisms of infection. But while vaccines offer a measure of protection against this specific outbreak, a new era of pandemics has been predicted. In addition to this, COVID-19 has drawn attention to post-viral...

Abstract The Coronavirus Disease 2019 (Covid-19) pandemic has profoundly affected the quality of life (QoL) and health of the general population globally over the past 2 years, with a clear impact on people with Parkinson's Disease (PwP, PD). Non-motor symptoms have been widely acknowledged to...

Abstract The Coronavirus Disease 2019 (Covid-19), caused by the Severe Acute Respiratory Syndrome Coronavirus-2 (SARS-CoV-2), has led to unprecedented challenges for the delivery of healthcare and has had a clear impact on people with chronic neurological conditions such as Parkinson's disease...

Full title: Sleep symptoms are essential features of long-COVID – Comparing healthy controls with COVID-19 cases of different severity in the international COVID sleep study (ICOSS-II) Summary Many people report suffering from post-acute sequelae of COVID-19 or “long-COVID”, but there are...

I'm sure they won't be..... Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

Manages not to mention ME even once. It does end with "This study advances clinical understanding of PASC symptoms and their impact on human life. Because nurses are experts in symptom management and there is no cure or treatment for PASC, nurse clinicians and researchers play a critical role...

Abstract Aims and Objectives To determine the frequency, timing, and duration of post-acute sequelae of SARS-CoV-2 infection (PASC) and their impact on health and function. Background Post-acute sequelae of SARS-CoV-2 infection is an emerging major public health problem that is poorly...

Full title: The GoodHope Exercise and Rehabilitation (GEAR) Program for People With Ehlers-Danlos Syndromes and Generalized Hypermobility Spectrum Disorders Introduction: The Ehlers-Danlos Syndromes (EDS) and Generalized Hypermobility Spectrum Disorders (G-HSD) comprise a heterogeneous group of...

Abstract Metabolic disorders or inborn errors of metabolism (IEMs) can have a wide range of neurodevelopmental and behavioral presentations. These can vary with age and/or management or stressors from common childhood/intercurrent illnesses/procedures/interventions. Collaborative care models...

ABSTRACT Objectives Motor functional neurological disorder (mFND) is a condition where individuals may experience difficulties such as tremors, gait impairments, and paralysis which are not explained by identified structural damage to the brain. Studies on chronic conditions have suggested that...

Currently, we are facing a new manifestation of functional neurological disorder presenting with functional Tourette-like behavior (FTB). This study aimed to show characteristics of this phenotype presenting as an outbreak of “mass social media-induced illness” (MSMI) and to explore predisposing...

Full title: Reducing fatigue in Long COVID-19: A feasibility study of a self-help intervention to reduce fatigue-related symptoms among patients in general practice Who is funding the study? The study is funded by Fund into Osteopathic Research Into ME (FORME) (UK) a charity to help patients...

I’m not sure when the name “living systematic review” was coined, but it was fleshed out in an article in 2014 by Julian Elliott and co. The name was new, though the concept – staying on top of new clinical trials and keeping meta-analyses very up-to-date – has been around for over half a...

A post not about recruitment. Chris, Diana (our project manager) and I met with Theo Richardson-Gool, from the MRC's Integrative Epidemiology Unit at the University of Bristol to discuss how DecodeME have involved the patient voice from the start of the project. Theo assured us that he has...

Trish Greenhalgh on how Long Covid isn't all in the mind...... https://youtu.be/2fXwWF4KoG4?t=1171

Abstract COVID-19 and ME/CFS present with some similar symptoms, especially physical and mental fatigue. In order to understand the basis of these similarities and the possibility of underlying common genetic components, we performed a systematic review of all published genetic association and...

Indeed, including how the authors of this article mention about learning lessons from other conditions but completely fail to mention ME.

Over the last two and half years, the COVID-19 pandemic has dominated headlines around the globe with Long COVID (also known as Post-Acute Sequelae of Covid-19 [PASC]) emerging as a significant health issue. The World Health Organization (WHO) defines Long-COVID as a post COVID-19 condition that...