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Trial By Error: Brain Publishes Letter About Flawed Study from NYU on ‘Psychogenic POTS’ https://www.virology.ws/2022/09/24/trial-by-error-brain-publishes-letter-about-flawed-study-from-nyu-on-psychogenic-pots/

@Caroline Struthers more evidence that the zombie review is still harming patients.

Paywalled article in New Scientist about this study. Tweets from author, where he also mentions DecodeME.

I assume "mean men" is a mis-translation issue, and should be something like "average man".

Full title: Evolution of the vls Antigenic Variability Locus of the Lyme Disease Pathogen and Development of Recombinant Monoclonal Antibodies Targeting Conserved VlsE Epitopes ABSTRACT VlsE (variable major protein-like sequence, expressed) is an outer surface protein of the Lyme disease...

It's correct in the next mention, "DecodeME" but continues to be "Pointing" until the last mention in the article where it is corrected to "Ponting". "A significant portion of the day was given over to discussion about the role of patient-priority-partnerships and involvement (so-called PPI)"...

The SMC not only deliberately calling it CFS/ME, rather than either CFS or ME/CFS, as used in the paper itself, but also allowing Alan Carson to give his 'expert' opinion...

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating disease with an unclear etiology and pathogenesis. Both an involvement of the immune system and gut microbiota dysbiosis have been implicated in its pathophysiology. However, potential interactions between...

Thanks for taking part. Yes, unfortunately this wasn't as clear as it could have been. We have already made changes to the text on the website to try to make this clearer to participants. Technically, yes, it would have been possible but we preferred the simplicity of "health professional"...

"DecodeME participation and criteria for the DNA stage We know how important DecodeME is to people with ME/CFS and we are grateful to the patient community for such a positive reaction to our launch. We have also seen and taken on board the frustration expressed by some who haven’t been asked...

Abstract Previous studies showed that people with Fibromyalgia (FM) suffer from dysautonomia. Dysautonomia consists of persistent autonomic nervous system hyperactivity at rest and hyporeactivity during stressful situations. There is evidence that parameters reflecting the complex interplay...

Abstract Rationale To describe cardiopulmonary function during exercise 12 months after hospital discharge for COVID-19, assess the change from 3 to 12 months, and compare the results with matched controls without COVID-19. Methods In this prospective, longitudinal, multicentre cohort study...

Abstract Background Functional neurological disorders have attracted a lot of attention of the neurological medical community over the last decades as new development in neurosciences has reduced stigma around it by showing brain network dysfunctions. An overlap with other neurological...

Abstract Background Healthcare is witnessing a new disease with the emergence of Long Covid; a condition which can result in myriad symptoms, varying in frequency and severity. As new data are emerging to help inform treatment guidelines, the perspectives of those living with Long Covid are...

Abstract Fifty-five patients who suffered from COVID-19, who were still very ill after several months, with extreme fatigue, effort exhaustion, brain fog, anomia, memory disorder, anosmia, dysgeusia, and other multi-systemic health problems have been followed in a family practice setting...

From a quick scan, while they refer to chronic fatigue syndrome, they seem to actually mean chronic fatigue, except when they are talking about the details of studies actually on chronic fatigue syndrome.

Abstract Fatigue is a common, non-specific symptom that often impairs patients’ quality of life. Even though fatigue may be the first symptom of many serious diseases, it is often underestimated due to its non-specific nature. Iron metabolism disorders are a prominent example of conditions...

Thanks for trying, and thanks for the positive feedback from you and others in more recent posts here. We are working on a blog post that hopefully will be out today which will seek to respond to the major concerns that have been raised.

Abstract Objectives The impact of long COVID among persons hospitalized and discharged home is unknown. We aimed to (1) report the prevalence of long COVID in persons hospitalized for COVID-19 and discharged home; (2) estimate the prevalence of physical, sensory, and psychological/mental health...

Abstract Background Persistent symptoms after initial COVID-19 infection are common and are frequently referred to by the umbrella terms “post-COVID syndrome” and “long COVID”. The sheer number of affected patients pose an increasing challenge to healthcare systems worldwide. To date, our...