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  1. Andy

    The Effects of Messaging on Long COVID Expectations: An Online Experiment, 2022, Mills et al

    Merged thread - paper now published Abstract Objective: We examined whether varying information about long COVID would affect expectations about the illness. Method: In October 2021, we conducted a 2 (Illness Description: long COVID vs. ongoing COVID-19 recovery) × 2 (Symptom Uncertainty...
  2. Andy

    Mechanism of the Huangguoshu waterfall forest environment’s promotive effect on human health in Guizhou, China, 2022, Zhu et al

    Recruitment of patients with chronic fatigue syndrome (CFS) Patients with CFS diagnosed in the psychology and psychiatric outpatient departments of the Affiliated Hospital of Guizhou Medical University and Guizhou Provincial People’s Hospital from January 2010 to January 2019 were recruited...
  3. Andy

    Mechanism of the Huangguoshu waterfall forest environment’s promotive effect on human health in Guizhou, China, 2022, Zhu et al

    Background: The aim of this study was to investigate the specific mechanisms underlying the human health-promoting effects of the forest environment at Huangguoshu Falls, Guizhou, China. Methods: Ninety-five participants were recruited and an eye tracker was used to record fixation and sweep...
  4. Andy

    Letter to BMJ: "Medical gaslighting: to say that invoking psychological symptoms is equivalent to dismissal is reductionist", Michael Sharpe

    "The news article on medical gaslighting raises the important point that doctors should always accept patient concerns about symptoms and never dismiss them as imaginary.1 But …" Paywalled, https://www.bmj.com/content/378/bmj.o2236 This seems to be a published rapid response to a BMJ News...
  5. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    To be clear, I put mainland UK due to my knowledge of the issues with the specified areas. I'm not aware of any other such issues for any other area, so I'll now amend the detail in my original post to state UK (excluding Isle of Man and Channel Isles), instead of mainland UK only.
  6. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    From the start of the project, we have supplied an FAQ on the website, this can be found here, https://www.decodeme.org.uk/faqs/ The specific entry for the exact criteria that is being used can be found here...
  7. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Because we are using certain research selection criteria to ensure, as best possible, we are taking samples from PwME, given the danger of misdiagnosis from GPs. Because there are issues with the Royal Mail tracking process to the Isle of Man that Royal Mail were unable to resolve, and Royal...
  8. Andy

    Gut microbiome of multiple sclerosis patients and paired household healthy controls reveal associations with disease risk and course, 2022, iMSMS Cons

    Highlights Gut microbiome was associated with multiple sclerosis (MS) risk and disease stage Distinct microbe-microbe interactions were found in MS patients Disease-modifying therapy modulates gut microbial communities The household recruitment minimized the dominant effect of diet on gut...
  9. Andy

    Impact of Long COVID on health and quality of life, 2022, O'Mahony et al

    Abstract Background: The aim of this study was to measure the impact of post-acute sequelae of COVID-19 (PASC) on quality of life, mental health, ability to work and return to baseline health in an Irish cohort. Methods: We invited individuals with symptoms of COVID-19 lasting more than 14...
  10. Andy

    Neurological Consequences, Mental Health, Physical Care, and Appropriate Nutrition in Long-COVID-19, 2022, Picone et al

    Abstract SARS-CoV-2 pandemic has caused a collapse of the world health systems. Now, vaccines and more effective therapies have reversed this crisis but the scenario is further aggravated by the appearance of a new pathology, occurring as SARS-CoV-2 infection consequence: the long-COVID-19...
  11. Andy

    Disentangling the cognitive, physical, and mental health sequelae of COVID-19, 2022, Wild et al

    Highlights Survivors of COVID-19 exhibit cognitive differences in specific domains Speed of processing, verbal, and reasoning are affected, but not memory function Performance in affected domains is linked to physical but not mental health These effects are observed in mild and hospitalized...
  12. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    We do expect to be able to start advising people whether they have been selected to donate a saliva sample or not, and give a more general update, 'soon'; we are hoping for end of this week/start of next. I can say we are grateful to have had a fantastic response so far but, as we expected, we...
  13. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    I've not listened to that particular interview so I don't know what was discussed but the primary aim of any interview about DecodeME and the launch is to get pwME to take part. An obvious secondary topic that is likely to come up is why this research is necessary, and in the interviews that I...
  14. Andy

    Comparison between the Impacts of Memory and Arithmetic-Based Dual Tasks on Physical Performance in Women with Fibromyalgia, 2022, Sánchez-Gómez et al

    Simple Summary This article focuses on comparing two types of cognitive tasks (memory or arithmetic) while performing a physical task. The application of two simultaneous tasks is known as the dual-task paradigm. In fibromyalgia, its analysis has become of great interest since most of the...
  15. Andy

    Working memory dysfunction in fibromyalgia is associated with genotypes of the catechol- O-methyltransferase gene, 2022, Ferrera et al

    Abstract Recent findings have associated different COMT genotypes with working memory capacity in patients with fibromyalgia. Although it is thought that the COMT gene may influence neural correlates (P2 and P3 ERP components) underlying working memory impairment in this chronic-pain syndrome...
  16. Andy

    ME Genetics Research Symposium, Edinburgh, 14th September 2022

    Did she say that? That is kind of her if she did but she was being unnecessarily modest, the slides were her work, all I did was provide some suggestions to tweak them slightly.
  17. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    I'm aware that I still owe you a full answer from your earlier query but in the interim, you can read what the Viking Genes study says about linking health records here, https://www.ed.ac.uk/viking/about-us/what-we-do/ehr-linkage (the relevance is that it is another GWAS conducted by the...
  18. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks Natalie. If people have not seen an email by now then I'm afraid it will have been lost in a dark corner of the internet somewhere, and we are discussing how we might address this moving forward. In the meantime, if you are aware of anybody waiting to receive an email, please could you...
  19. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    In a ten minute interview, I thought that Jennie and Chris did well to set the context of the terrible effect that ME can have on those with it and their family and friends. They also talked about how neglected and lacking in understanding, treatment options and research it has been, although...
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