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Looks like various parties will now have an incentive to go into "bury it like Gulf War Syndrome" mode.

I appear to be in the German equivalent of group 6. To my surprise recently I received a letter with vouchers for 12 free masks, the letter was from the German government saying they had been informed by my health insurance company that I'm at risk and therefore entitled to free masks. I didn't...

Are you absolutely shitting me?

Maybe you'll get a mention in @Sasha's unboxing youtube video! "There is no need to do any housework at all. After the first four years the dirt doesn't get any worse. It's just a question of not losing your nerve." - Quentin Crisp

Headaches used to be my main symptom, also my main tracking statistic and warning signal. My ME headaches are unresponsive to any medication, all I can do is lie down, I used to have to lie down for 2 days to get rid of one, now if I'm lucky half a day to a day does the job. If I don't lie down...

I often keep myself awake longer than I should. I'm sure lots of people do. So take a thing (staying up doing stuff longer than you should), make up an explanation for it (compensating for lack of control in the daytime), and hope it starts trending. Indistiguishable from psychobabble to me. I...

When I was about six years old I used to wish I was taller, and over the years, using only the miraculous power of my mind, I became taller. This is probably why some LP investigators prefer to study children, it's easier to get results. Unfortunately I lost the gift later in life, although I...

A selection of PG's words, helpfully summarized in @Valerie Eliot Smith's blog: PG has clearly acquired a new vocabulary from his "international network of evidence specialists". In particular, he has learnt that ME patients are obsessive, paralysed with fear, "mentally low", send unsolicited...

It was a reference in the wikepedia entry for Duration Neglect :) There's quite a heady mix brewing here. PG seems to have swallowed the BPS dogma hook line and sinker as a patient, and fallen for the attractive belief that he caused his own recovery (I wonder which side of the fence he'd be...

Thanks, I was wondering why this song won the recent Cochrane Theme Tune contest:

The imagery of it. Of all the analogies he could have used, why choose that one? Is that really how he sees himself? Oh the bravery, the heroism, standing fast against all the odds, so tough, so fearless. What an example to us all. And to combine those noble characteristics with unwavering...

I think it's a very apt analogy. As far as I'm aware (and anyone who has done military training, in Sefton Park or elsewhere, please feel free to correct me), the correct way to disarm a gun is not by giving it a hard stare. The fact that PG thinks he can do this shows a worrying level of...

I've been pondering "duration neglect" lately (which I first read about in Thinking Fast and Slow). I can no longer remember how it was in the 2-3 years when I was either dragging myself to work with a headache like a zombie or lying on the sofa in between sending myself back to bed every 2.5...

I think that book's one of a series, which also includes "Unlearn your medical education" and "Unlearn your lobotomy".

I find your vicious and unprovoked attack to be unwarranted and insulting. To prevent me having to suffer any further harrassment and abuse I will not be engaging with you further. Please also be aware that should you send me any death threats, I will report them to the police immediately. Zero...

On reflection I don't believe there is such a list. Her use of the phrase "hit list" is a manipulative way of making us sound like we can be bothered to compile such a list and act on it. It's a lie, and she told it. It's just a way of constructing the tried and tested militant activist...

I was referring to the "hit list" which TG claims exists with her name on it: I'm a little annoyed that nobody told me about this list, especially as I'm on the committee and I like a good argument. If we're having a coordinated campaign of online abuse of those who are trying to help us I'd...

Where is this "hit list" of ours by the way? You'd think somebody would have told me.

From Jen Brea's tweet: There's a right way?

Don't know if I've mentioned this before, but until a year or two ago I had a lifelong paralysing fear of spiders, and if no-one was in the house to rescue me when I screamed I'd have to go and get the neighbours. I knew that there was an effective therapy but never went or kept putting it off...