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2022 https://www.pnsociety.com/i4a/pages/index.cfm?pageid=3313 AFM & GBS GRANTS The NIAID, NINDS, and NICHD have jointly issued a Notice of Special Interest encouraging new applications and request for supplements to existing grants (competitive revisions or administrative supplements) to...

Two posts about BBC items about a person with ME/CFS' experience with the North Cumbria Integrated Care Trust have been moved here: United Kingdom: North Cumbria Integrated Care Trust

From the first post - BBC LookNorth item 1 Jul 2022 Stephen, an NHS heath professional, developed ME/CFS after an adverse reaction to a Covid vaccine. He explains why it is like to have ME/CFS, and the consequences of it - he no longer works, mostly housebound, some days he can't get out of...

This WAVE3 finding is discussed more here The NIH is launching a new study of mitochondria in ME/CFS x2.

My (slightly hurried) notes on what Professor Younger says: 1. The brains of people with ME/CFS are hotter (99.5 to 102 degrees F) than those of healthy people (healthy 97.5 to 99.5 degrees F) The work done with the Solve ME grant (15 people with ME/CFS) was promising enough for the NIH to fund...

Sure. And no, re the possibility of posting too many papers, as far as I am concerned, please keep posting. I'm interested in this vagal stimulation idea as it seems to have a lot of support among ME/CFS advocates and clinicians, and it's being promoted quite strongly for all manner of health...

I'm not sure why you put this study in Research methodology @SNT Gatchaman. Is it because you think the study design is a good one? Or a bad one? The approach to the sham treatment looks good, with both treatments getting an initial burst of sensation, and then the treatment stimulation being...

I don't find that hyperbolic at all. Much of the way life is done is a popularity contest - part of it is fashion, part of it is doing or saying what you think will be acceptable to those who have power. Careful logic often comes a fair bit of the way down the list, hopefully not so much when...

I got a nice reply from Suzanne Vernon; there was a glitch with making the charts for inclusion in the article. She has contacted the journal to replace the incorrect charts with the correct ones. Edited to add - she appreciated being alerted to the problem. I did ask if there could be error...

I don't really know what to think about hypnosis. I'm not sure if it is a thing. I've read some views that it is just suggestion - that the volunteers who take part on the stage shows for example know, at some level, that they are putting on a show and are chosen back stage for their...

I guess if a change in the curvature of the left superior temporal sulcus really was correlated with an improvement in fatigue, that might give a clue as to what treatment should be offered (with that part of the brain's links to 'audiovisual processing and motion perception' I predict it will...

That all sounds very difficult @boolybooly. I guess I think the consequences of labelling all people with ME/CFS as more emotionally labile than the difficult circumstances of having a debilitating chronic illness that is widely disbelieved would warrant, is that we when we are angry or sad...

So, it seems people with CFS are too suggestible (or at least some subset of people with severe symptomology, or long lasting illness, or self-harming behaviours or well, it's not really clear, but it's all sort of in there). And yet, we are also not suggestible enough, because CBT doesn't fix...

So, we don't have certain evidence of capillary damage here, but some indications of it. The Berlin Cures/Hohberger people also found evidence of capillary damage in the retina of one man with Long Covid. Neutralization of AAB Targeting G-Protein Coupled Receptors Improves Capillary Impairment...

The general idea of the study was ok - collect a lot of data at baseline and at 6 months and see if there were any correlations between the data and fatigue improvement. But the researchers seem to be in thrall to their methodologies and machines, using a chromosome/gene metaphor to add an air...

People do seem excited about this. My notes based mainly on the Wild and Collier editorial: This approach with radioactive Xenon gas (assessed in an MRI) is much more sensitive than the CT scans of lungs. It's possible to track the passage of the gas through the lungs, into the interstitial...

Yes, so there are four related papers. Step on the 129Xe Gas: The MRI Race to Uncover Drivers of Post-COVID-19 Symptoms, 2022 Grace Parraga and Alexander M. Matheson Editorial in the Radiology journal commenting on the Grist, Collier, Wild paper...

(Oh good, looks like I got away with my off-topic posting :whistle:)

It's quite a clever development. If the government doesn't have enough money to fund all three of health, the arts, and sport, then just combine them. Fund the opera to do breathing training, and the golf courses to deliver, well, whatever golf is supposed to do for Long Covid. Every dollar...

We have this thread (maybe on the same paper as the one you were looking at) discussing the evidence for CBT and the problems with CBT trials. The evidence for CBT in any condition, population or context... A meta-review... and panoramic meta-analysis, 2021, Fordham et al. There's more...