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Also at second glance. by Elaine Meade 1 and Mary Garvey 1,2,* 1 Department of Life Science, Atlantic Technological University, F91 YW50 Sligo, Ireland 2 Centre for Precision Engineering, Materials and Manufacturing Research (PEM), Atlantic Technological University, F91 YW50 Sligo, Ireland...

I was alerted to this by a SolveME email: The World Health Organization’s clinical management and maternal child adolescent teams will be hosting a webinar on Post COVID-19 Condition in Children and Young People on Wednesday 17 August 2022 from 1:30 – 3:30 pm CET. The webinar will feature...

It all depends on the time scale, doesn't it. From Jaybee00's link - 5 year share price history for Axcella. As Wonko said, that comment about trading volume is misleading, and sounds to me like someone trying to beat up enthusiasm.

Nice find, LarsSG. I think all patient charities should be demanding that all clinical trials for ME/CFS and Long Covid are pre-registered. They can start by ensuring that's the case with any studies that they fund or promote. They can lobby government agencies to adopt this as standard, both...

[Preprint] Coenzyme Q10 as Treatment of Post COVID-19 Condition, 2022, Hansen et al A well-conducted study of CoQ10 for Long Covid by a Danish team - they found CoQ10 made no difference to number or severity of symptoms. (Link that was broken by a thread merge has been updated)

[Preprint] Coenzyme Q10 as Treatment of Post COVID-19 Condition, 2022, Hansen et al A nice paper assessing a treatment for Long Covid from a Danish team that appear to be setting up to assess other Long Covid treatments. Good quality research, although the team would benefit from a chat with...

This team made a "PCC-symptom specific questionnaire" with each symptom assessed using a 0 to 4 scale. The list looks pretty good, although it is missing PEM and orthostatic intolerance - maybe someone could talk to them about ME/CFS criteria? The paper has a lot of good figures that clearly...

Yes, but that makes the ongoing sale of the test through Celltrend, particularly with the narrative that doesn't refer to the later work on the website, all the more strange.

The result is hardly a surprise given what we know about CoQ10 for ME/CFS. The surprise is a well-structured trial with a placebo and double-blinding, and researchers willing to report a negative result. Danish team - Aarhus University

Celltrend continues to offer these tests as diagnostic e.g. https://www.celltrend.de/en/pots-cfs-me-sfn/important-publications/ Does anyone know if Professor Scheibenbogen or Charite Berlin benefits from the ongoing sale of these tests? It's a bit interesting to look back on the Phoenix...

Yes. Xie et al have a number of papers that we have commented about on the forum including this recent one that goes into the comparison with CBT a bit more: The Qigong of Prolong Life With Nine Turn Method Relieve Fatigue, Sleep, Anxiety and Depression in Patients With CFS:, 2022, Xie et al...

Well, that doesn't sound good. An intervention that leaves patients with abnormal brain function?

Another interesting biochemistry study, with a lot of analyses. Again, check out the paper itself, and our thread on it if you are interested. Viruses can produce dUTPase during lysis [when the cell membrane is ruptured (lysed) to allow all the replicated virions to burst out and go about...

These heavy duty immunology presentations only had 15 minutes each, with 15 minutes for combined questions. Rather than two presentations on the questionable Stellate Ganglion Block treatment for example, I think in future it would be better for presenters with detailed biochemistry content to...

Well, each dot is the level of the specific autoantibody for a person. So, yes, we can compare the mean, as shown by the red lines, which show little difference. And we can compare the range visually - and there is quite a lot of overlap. There are the p values, which suggest that there are...

Dr Sato moved very quickly through a lot of papers. I didn't manage to record much that was useful; my notes below are subject to confirmation when the recording is available. I missed things. He mentioned his 2021 paper on B cell receptors (link above), noting "deviated functional B cell...

Here are the results from the paper: Muscarinic autoantibodies B adrenergic autoantibodies

From the paper:

I think a risk is that the lean test is done once in a doctor's office, and it is perfectly normal and that is the end of any discussion about orthostatic intolerance. Certainly with me, my results fluctuate a lot. Yes, we need validation of the test as discriminating between people with OI...

https://www.sciencedirect.com/science/article/pii/S0889159115300209?via%3Dihub Open Access Madlen Loebel 1, Patricia Grabowski 2, Harald Heidecke 3, Sandra Bauer 2, Leif G Hanitsch 2, Kirsten Wittke 2, Christian Meisel 4, Petra Reinke 5, Hans-Dieter Volk 6, Øystein Fluge 7, Olav Mella 8, Carmen...